CFSupport

The Northern Virginia (NOVA)
CFS/FMS/OI
Support Group

 
Events - 2009

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2009 CFS/FMS/OI Events
in the
US National Capital Area
Northern Virginia (NOVA), Washington, DC, and Suburban MD
(teleconferences and distant events of interest)

 CFSupport Meetings - Year at a Glance

Full Schedule:
 

January

February

March

April

May
June July August
September October November December


Join CFSupport E-mail list for Email Notices
More Event Options

View our simplified CFSupport  Yahoo! Calendar .


NOVA CFS/FMS SG Chantilly meetings are usually on
the 3rd Saturdays, 2-4 p.m.
(Exceptions noted. Meetings end closer to 4:30 when there are speakers.)

Sully Governmental Center
James McDonnell Room
4900 Stonecroft Road
Chantilly VA 20151
 Directions
Free, close parking. No stairs. Same building as the Sully District Police Station
Way outside the Capital beltway.
Between Routes 50 and 66,
just west of Route 28 at the Westfields Blvd West exit.

The buidling is closer to Westfields Blvd than Yahoo,
Google and Mapquest maps indicate.

Please refrain from wearing scented products.


CFS, CFIDS, M.E. ~ Chronic Fatigue Syndrome
FM, FMS ~ Fibromyalgia Syndrome
OI ~ Orthostatic Intolerance (Becoming more symptomatic when upright and still)
POTS ~ Postural Tachycardia Syndrome
NMH ~ Neurally Mediated Hypotension
MVPS/D ~ Mitral Valve Prolapse Syndrome / Dysautonomia
(Also welcome are those with IBS ~ Irritable Bowel Syndrome,
Chronic Lyme, Vulvodynia, similar syndromes and symptoms)



2009 NOVA CFS/FMS Meeting Schedule Overview

(Saturdays, 2-4 pm, Sully Gov't Center, Chantilly VA, unless otherwise noted.
 Directions.)
 
Jan 17  -  Medical Qigong & Self-Health. Matt Hayat, PhD, NMQ
Feb 28 -  4th Saturday, 2 pm - 4 pm, discussion meeting
Mar 21 - "Update on Orthostatic Intolerance  in Chronic Fatigue Syndrome (CFS)" 
                Peter Rowe, MD, of Johns Hopkins.
Apr 18 -  Discussion
Apr 25 -  "CFS: Is Oxygen the Problem and Why?"  Paul Cheney, MD, PhD
                (Location: Fairfax Gov't Center,  6-9 pm, 4th Saturday)

May 12 - Awareness Day. -- Support Teleconference
May 16 - Discussion
June 20 - Discussion
July 18 - 10 am - 12 pm. Social Security Attorney Mitch Lambros, J.D.
Aug 15 - Discussion
Sep  19 - 10 am - 12 pm. Discusssion
Oct  17 - Speaker - Virginia Mitchell, Acupuncturist, "Non-linear aspects of healing"

Nov 21 - Speaker - Michael Jawer, Author of Spiritual Anatomy of Emotion
Dec 19 ~  Social/ POTS Luck


For the "When Pushing Stops Working" series of discussions
        by
Jonathan Gilbert and Elly Brosius
        see www.whenpushingstopsworking.com/Schedule.html




January 2009

          
  Eastern Loudoun (Cascades) Library
  21030 Whitfield Place, Sterling VA 20165. Free.
  Across library from the front door, a smaller room enclosed in glass.
  For information, email Patti or Rowena or Adriana
  Also has a Walk & Chat subgroup, a movie going subgroup.

   Christ Lutheran Church
   8011 Old Georgetown Road, Bethesda, MD 20814
   Hospitality Room (1st Floor)
   For more inform, contact Andrea, or call Marielle (301) 718- 9326.
 
Speaker meeting: Medical Qigong with Matt Hayat, PhD, NMQ.
Integrated Whole Body Therapy

  NEW MEETING LOCATION, 1st time speaker

  Sully Governmental Center, James McDonnell Room
  (same building as Sully District Police Station)
  4900 Stonecroft Blvd, Chantilly VA 20151. Free.
  No registration required. (703) 968-9818, (410) 647-7578.
  See also: Meetings, SpeakersDirections.
 
 
 "Depression and Chronic Pain - Treatment Methods"
  Gary Kaplan, DO
  Holiday Park Senior Center, 3950 Ferrara Dr, Wheaton MD 20906
  (240) 777-4999 (directions only)
  For info, Pain Connection Support Groups, call (301) 309-2444.
  TELECONFERENCE
  For those with CFS, FMS. and/or OI
  A mind-body-spirit discussion Conference Call. 

  Join our email list for the ph number and code or call 703-968-9818,
  write eggdish-owner@yahoogroups.com or see EGG.
  No fee, but each caller pays his or her own long distance charges. 



February 2009


  Thomas Ziegler, Medicap Pharmacy in Ashburn. postponed
  Lansdown Leesburg Hospital
  44045 Riverside Parkway,
Leesburg, VA
  Conference room A/B
  (No longer a monthly group.)  

  For more information, contact CFSupport at 703-968-9818.
  PDF Flyer for Loudoun Group
 
   Christ Lutheran Church
   8011 Old Georgetown Road, Bethesda, MD 20814
   Hospitality Room (1st Floor)
   For more inform, contact Andrea, or call Marielle (301) 718- 9326.
  Eastern Loudoun (Cascades) Library
  21030 Whitfield Place, Sterling VA 20165. Free.
  Across library from the front door, a smaller room enclosed in glass.
  For information, email Patti or Rowena or Adriana
  Also has a Walk & Chat subgroup, a movie going subgroup.
See February 28th for special
4th Saturday 2 pm meeting in Chantilly, VA
 
 "Learn How to Use Your Body
   Without Straining the Parts that Hurt"

  Kim Thompson, Movement Specialist
  Holiday Park Senior Center, 3950 Ferrara Dr, Wheaton MD 20906
  (240) 777-4999 (directions only)
  For info, Pain Connection Support Groups, call (301) 309-2444.
 
  TELECONFERENCE
  For those with CFS, FMS. and/or OI
  A mind-body-spirit discussion Conference Call. 
  Join our email list for the ph number and code or call 703-968-9818,
  write eggdish-owner@yahoogroups.com or see EGG.
  No fee, but each caller pays his or her own long distance charges.
  Discussion meeting.

  SPECIAL 4th Saturday of Month -- At new Chantilly Location

  Sully Governmental Center, James McDonnell Room
  (same building as Sully District Police Station)
  4900 Stonecroft Blvd, Chantilly VA 20151. Free.
  No registration required. (703) 968-9818, (410) 647-7578.
  See also: Meetings.  Directions.
 



March 2009


"Living and Loving a Gluten Free Diet" Class
  3345 Duke Street, Alexandria. (571) 271-8742.
  Cost: $20 or 2 for $35
  Pre-registration is required. Taught by CFSupport member, Cheryl

Many people with FM or CFS report much less joint pain or fatigue when they avoid gluten. One of my clients put it best when she said that FM was like alway carrying around a sack of bricks, and when she avoided gluten, there were fewer bricks to carry around.  Class covers:

  * Celiac disease, gluten sensitivity and the importance of testing
  * All you ever wanted to know about label reading
  * Foods to avoid, cross contamination and hidden gluten
  * Sorting out the facts from common myths
  * Where to get support-local and online groups, websites, books
 
The 9th International IACFS/ME Conference:
"Developing Interdisciplinary Collaborations"


Peppermill Resort, Reno, Nevada

The Patient Conference is  March 12th and will include sessions on:

- New Developments on Possible Causes of ME/CFS
- New Research on What Helps People Cope with ME/CFS
- Latest Research on the Pathophysiology of ME/CFS
- Advances in Asssessing ME/CFS
- New Developments in Pharmocologic Treatments
 
For more information visit:
http://www.iacfsme.org

   
  Eastern Loudoun (Cascades) Library
  21030 Whitfield Place, Sterling VA 20165. Free.
  Across library from the front door, a smaller room enclosed in glass.
  For information, email Patti or Rowena or Adriana
  Also has a Walk & Chat subgroup, a movie going subgroup.
 
   Christ Lutheran Church
   8011 Old Georgetown Road, Bethesda, MD 20814
   Hospitality Room (1st Floor)
   For more inform, contact Andrea, or call Marielle (301) 718- 9326.

 
 Very special speaker meeting:
 
"Update on Orthostatic Intolerance in CFS (and FM)"
  with Peter Rowe, MD, Sunshine Natural Wellbeing Foundation
  Professor of Chronic Fatigue and Related Disorders, Department of
  Pediatrics, Johns Hopkins University School of Medicine;
  Director, Chronic Fatigue Clinic, Johns Hopkins Children's Center.

  
This talk will describe the links between disturbances in the control
  of blood pressure and heart rate in those with CFS, and discuss
  practical aspects of managing symptoms caused by the circulatory
  problems. 


  More about Peter Rowe, MD.

  Sully Governmental Center, James McDonnell Room
  (same building as Sully District Police Station)
  4900 Stonecroft Blvd, Chantilly, VA 20151. Free.

  No registration required. (703) 968-9818, (410) 647-7578.
  See also:
Meetings, Speakers.  Directions.
 
 

EGG Group dinner after meeting, all are welcome. ~  5 pm  3/21/09
Menu
Eggspectations            
5009 Westone Plaza Dr.
Chantilly, VA 20151
Phone: (703) 263-7444
 "Treating Chronic Pain"
  Michael April MD, Physiatrist and Pain Specialist
  Holiday Park Senior Center, 3950 Ferrara Dr, Wheaton MD 20906
  (240) 777-4999 (directions only)
  For info, Pain Connection Support Groups, call (301) 309-2444.
 

  Special speaker meeting:  Award winning journalist and Senior Anchor at WSET News 13 Noreen Turn will speak about her experience with Lyme disease.
 
  St John's United Methodist Church Hall
  351 E 21st St, Buena Vista VA

  (Off Route 81, near Lexington, VA, north of Roanoke, Lynchburg)
  For more information, call (540) 261-6280 or write Stanzi.
 
  TELECONFERENCE
  For those with CFS, FMS, and/or OI
  A mind-body-spirit discussion Conference Call. 
  Join our email list for the ph number and code or call 703-968-9818,
  write eggdish-owner@yahoogroups.com or see EGG.
  No fee, but each caller pays his or her own long distance charges.

April 2009

  
  Brian Walitt, MD, Rheumatologist
  Lansdown Leesburg Hospital

  44045 Riverside Parkway, Leesburg, VA
  Conference room A/B
 
(No longer a monthly group.)  
  For more information, contact CFSupport at 703-968-9818.
  PDF Flyer for Loudoun Group
 
  Eastern Loudoun (Cascades) Library
  21030 Whitfield Place, Sterling VA 20165. Free.
  Across library from the front door, a smaller room enclosed in glass.
  For information, email Patti or Rowena or Adriana
  Also has a Walk & Chat subgroup, a movie going subgroup.
  • April 18, 2009, 3rd Saturday, 2 - 4 pm: NOVA CFS/FMS Support Group

      Discussion meeting only. Following week is speaker meeting in different
                        location. See April 25.

       Sully Governmental Center, James McDonnell
    Room
      (same building as Sully District Police Station)
      4900 Stonecroft Blvd, Chantilly VA 20151. Free.
      No registration required. (703) 968-9818, (410) 647-7578.
      See also: Meetings.  Directions.

     
  • April 21, 2009, Tues, 7 - 9 pm: Bethesda Fibromyalgia/CFS Support Group
   Christ Lutheran Church
   8011 Old Georgetown Road, Bethesda, MD 20814
   Hospitality Room (1st Floor)
   For more inform, contact Andrea, or call Marielle (301) 718- 9326.
  • Saturday April 25, 2009, 6 - 9 pm:  SPECIAL EVENT & LOCATION **

    "Chronic Fatigue Syndrome (CFS):
       Is Oxygen the Problem and Why? 
        A Four-Part Treatment Protocol"


    Fairfax County Governental Center - The Board Auditorium
    12000 Governmentt Center Parkway
    Fairfax, VA 22035

    See our New Page for Dr. Cheney and this event
    (DVD info will be posted at this link)


    CFSupport's  Written Driving Directions and Travel Notes
    CFSupport's Map to the Event Location
    CFSupport's Map Inside the Building

    Hosted by

    NOVA CFS/FMS Support Group
    and co-sponsored by
    CFS & FM Support Group of Dallas/ Fort Worth, TX

    Speaker: Paul Cheney, MD, PhD
      CFS and Environomental Illness (EI) Expert
       of The Cheney Clinic in Asheville, NC

    In addition to presenting a broad overview of CFS  including important principles, case definition, clinical findings, objective data, key medical literature, Dr. Cheney will present on oxygen toxicity as well as his latest four-part treatment protocol:

    Oxygen Toxicity as a Controlling Factor for CFS

    This section of the presentation will focus on the research finding of nearly 100% toxicity in CFS patients when oxygen is administered.  Dr. Cheney will present evidence that patients categorized according to increasingly powerful treatment protocols were transformed to an increasingly oxygen tolerant state. The most powerful treatment protocol was also associated with significant overall clinical improvement. Conclusions drawn from this are CFS is an oxygen toxic state, oxygen toxicity status appears to determine outcome in therapeutic trials, and oxygen toxicity is  key to this illness. These findings appear to force a narrowing of potential causes of CFS because whatever pathophysiology one puts forth must explain universal oxygen toxicity in CFS. Dr. Cheney will also present recent evidence of the likely cause of this oxygen toxicity.
    For more:  Oxygen Toxicity as a Locus of Control for CFS

    Cell Associated Therapy for Chronic Fatigue Syndrome: 
    Is this the Next Frontier?


    Dr. Cheney will discuss the use of low molecular weight (LMW), mammalian tissue derived peptides as therapeutic agents when applied to the skin using novel transdermal gels. These LMW peptides are known to control gene expression and can shift organ function toward normal. Data will be presented from a one-year prospective trial in CFS using these LMW peptides which produced significant improvement in function. Therapy with LMW peptides from cell associated, mammalian tissue homogenates appear to offer a significant benefit in CFS, especially where it counts the most, namely, the functioning of the patient.  (or ... namely, the patients' ability to do more and feel better.)
    For more:  Cell Associated Therapy for Chronic Fatigue Syndrome:  Is this the Next Frontier?

      
      Registration, cancellations requested to, for more info,
      contact NOVA Leader Elly Brosius at (703) 968-9818 or
      cfsupport-owner@yahoogroups.com


      Free seminar.
      Please do not wear scented products.

      Event will be video taped for possible future DVD sales.

      Any changes regarding this event will be posted on the
      NOVA group's Events Web Page:
     
    NOVA Events


      See also the DFWcfids.com page on Dr. Cheney
        includes artilces, interviews and treatment protocols.

 "Hypnotherapy and Chronic Pain"
  Richard Klimek PhD, Psychologist
  Holiday Park Senior Center, 3950 Ferrara Dr, Wheaton MD 20906
  (240) 777-4999 (directions only)
  For info, Pain Connection Support Groups, call (301) 309-2444.

 
  TELECONFERENCE
  For those with CFS, FMS, and/or OI
  A mind-body-spirit discussion Conference Call. 
  Join our email list for the ph number and code or call 703-968-9818,
  write eggdish-owner@yahoogroups.com or see EGG.
  No fee, but each caller pays his or her own long distance charges.

May 2009

  • May 12, 2009: International CFIDS, FM, CIND Awareness Day

  • May 12, 2009, 2nd Tues, 12-2 PM:  NOVA MVPS/ D & OI Support Group 

      By teleconference!!****  Let's call this one our Awareness day event.
      
    No registration required.  
      People w/CFS/FMS also welcome since often have overlapping symptoms.
      Free, but any long distances telephone charges apply.
      Sign up for montly reminder emails conference calls and codes at
       mvps-d_oi_nova at Yahoo,
    write mvps-d_oi__nova-owner@yahoogroups.com
       or call
    703-968-9818 or 410-647-7578 for information.
       (CFSupport email members also get reminders with number and code.)
  • May 16, 2009, 3rd Saturday, 2 - 4 pm: NOVA CFS/FMS Support Group

      Discussion meeting.
      Sully Governmental Center, James McDonnell Room
      (same building as Sully District Police Station)
      4900 Stonecroft Blvd, Chantilly VA 20151. Free.
      No registration required. (703) 968-9818, (410) 647-7578.
      See also:
    Meetings,  Directions.
     
     
  • May 18. 2009, Monday Series, 1:30 - 3 pm: Pain Connection Speakers
 "Communication Skills  andTechniques
        for Couples & Family Members"
  Anita Bains, LCSW
  Holiday Park Senior Center, 3950 Ferrara Dr, Wheaton MD 20906
  (240) 777-4999 (directions only)
  For info, Pain Connection Support Groups, call (301) 309-2444.
  Eastern Loudoun (Cascades) Library
  21030 Whitfield Place, Sterling VA 20165. Free.
  Across library from the front door, a smaller room enclosed in glass.
  For information, email Patti or Rowena or Adriana
  Also has a Walk & Chat subgroup, a movie going subgroup.
   Christ Lutheran Church
   8011 Old Georgetown Road, Bethesda, MD 20814
   Hospitality Room (1st Floor)
   For more inform, contact Andrea, or call Marielle (301) 718- 9326. 
A meeting of the CFSAC, held in Washington, D.C. Agenda usually includes health agency updates and public testimony. This meeting is at the Department of Health and Human Services, Hubert H. Humphrey Building, 200 Independence Avenue, SW, Room 800, Washington, DC 20201. Photo ID req'd. Open to the public. Pre-registration required for public testimony with Dr. Wanda K. Jones, Deputy Assistant Secretary for Health (Women's Health), (202) 690-7650. The CFIDS Association's meeting reports, dating back to 2003 are available as are schedule updates, reports via the CFIDSLink. See also the About the CFSAC.

Please note that the Centers for Disease Control and Prevention will release its draft of the 5-year strategic plan for CFS research at this meeting. The draft will be posted at www.cdc.gov/cfs and public comment is invited until June 30, 2009. See more information at cdc.gov/cfs/meetings/2009_04.htm.

The meeting will be webcast at videocast.nih.gov. Please click on "Click to Watch." Realplayer is required to view the videocast. This video will also be archived.
   Our NOVA CFS, FMS & OI Support Group will have two tables.
   Reston Town Center
   11900 Market St, Reston VA 20190
   Sponsored by the Sjorgren's Syndrome Foundation (800) 475-6473
   In addition to support groups having tables, there will be booths by 
   booths, a "Walkabout," a Simon Says exercise warm up,
   Door Prizes, Games, and Interactive Exhibits.


 See June 1, 2009.

 


June 2009

  For those with CFS/FMS/OI. Mind-body-spirit Conference Call. 
  Join our email list for the number and code or call 703-968-9818,
  write eggdish-owner@yahoogroups.com or see EGG.
  No fee, but each caller pays his or her own long distance charges. 

  Overland Park, Kansas
  For more information, see the FCI website at
  http://www.fibrocoalition.org/
 
  Speaker: Beth Eckhaus
  Holistic Health and Nutrition Counselor
  "Integrative Nutrition:
   Using Food as Medicine on your Healing Journey"

   -- great whole foods to add into each day in enjoyable ways,
       helping to alleviate pain and inflammation
       lifting the spirits, providing energy
   -- identifying foods that may be exacerbating symptoms
   -- ways to experiment with foods to find the most healing diet
   -- the importance of primary foods on a healing journey –
       the things that nourish us that don’t come on a plate.
    -- plenty of time for Q&A and group discussion as well.

  Inova Loudoun Hospital

  44045 Riverside Parkway, Leesburg, VA
  Conference room A/B
  (No longer a monthly group.)
  For more information, contact CFSupport at 703-968-9818.
  PDF Flyer for Loudoun Group
   Christ Lutheran Church
   8011 Old Georgetown Road, Bethesda, MD 20814
   Hospitality Room (1st Floor)
   For more info, contact Marielle (301) 718- 9326.
  "When Pushing Stops Working"
   Acupuncturist and Herbalist Jonathan Gilbert and
   CFS/FM Support Facilitator Elly Brosius
   Doylestown Hospital, Conference Room B

   595 West State Street, Doylestown, PA 18901
   (Just north of Philidelphia)
   For more info about PA group, directions, contact Bruce Uhrich (215) 345-2657
   For more information about speakers, contact Elly at (703) 968-9818
   PDF Flyer for June 16

  Eastern Loudoun (Cascades) Library
  21030 Whitfield Place, Sterling VA 20165. Free.
  Across library from the front door, a smaller room enclosed in glass.
  For information, email Patti or Rowena or Adriana
  Also has a Walk & Chat subgroup, a movie going subgroup.
  • June 20, 2009, 3rd Saturday, 2 - 4 pm: NOVA CFS/FMS Support Group

      Discussion meeting.
      Sully Governmental Center, James McDonnell Room
      (same building as Sully District Police Station)
      4900 Stonecroft Blvd, Chantilly VA 20151. Free.
      No registration required. (703) 968-9818, (410) 647-7578.
      See also:
    Meetings,  Directions.
     
     
  • June 22. 2009, Monday Series, 1:30 - 3 pm: Pain Connection Speakers
 "Treating Pain with Acupuncture"
  Lisa Marie Price, L.Ac., Dipl. Ac.
  Holiday Park Senior Center, 3950 Ferrara Dr, Wheaton MD 20906
  (240) 777-4999 (directions only)
  For info, Pain Connection Support Groups, call (301) 231-0008.
 

 
  For those with CFS/FMS/OI. Mind-body-spirit Conference Call. 
  Join our email list for the number and code or call 703-968-9818,
  write eggdish-owner@yahoogroups.com or see EGG.
  No fee, but each caller pays his or her own long distance charges. 

July 2009

  Eastern Loudoun (Cascades) Library
  21030 Whitfield Place, Sterling VA 20165. Free.
  Across library from the front door, a smaller room enclosed in glass.
  For information, email Patti or Rowena or Adriana
  Also has a Walk & Chat subgroup, a movie going subgroup.

 
   Christ Lutheran Church
   Hospitality Room
   8011 Old Georgetown Road, Bethesda, MD 20814
   For more info, contact Marielle (301) 718- 9326.

 
  For those with CFS/FMS/OI. Mind-body-spirit Conference Call. 
  Join our email list for the number and code or call 703-968-9818,
  write eggdish-owner@yahoogroups.com or see EGG.
  No fee, but each caller pays his or her own long distance charges. 
 

August 2009

 
  • August 11, 2009, 2nd Tues, 12-2 PM:  NOVA MVPS/ D & OI Support Group 

      By teleconference!!****
      
    No registration required.  
      People w/CFS/FMS also welcome since often have overlapping symptoms.
      Free, but any long distances telephone charges apply.
      Sign up for montly reminder emails conference calls and codes at
       mvps-d_oi_nova at Yahoo,
    write mvps-d_oi__nova-owner@yahoogroups.com
       or call
    703-968-9818 or 410-647-7578 for information.
       (CFSupport email members also get reminders with number and code.)
  • August 15, 2009, 3rd Saturday, 2 - 4 pm: NOVA CFS/FMS Support Group

      Discussion meeting or TBD.
      Sully Governmental Center, James McDonnell Room
      (same building as Sully District Police Station)
      4900 Stonecroft Blvd, Chantilly VA 20151. Free.
      No registration required. (703) 968-9818, (410) 647-7578.
      See also:
    Meetings,  Directions.
     
  • Aug 19, 2009, 3rd Wed, 1 - 2:30 pm: Loudoun Daytime Fibro/CFS Support Group
  Eastern Loudoun (Cascades) Library
  21030 Whitfield Place, Sterling VA 20165. Free.
  Across library from the front door, a smaller room enclosed in glass.
  For information, email Patti or Rowena or Adriana
  Also has a Walk & Chat subgroup, a movie going subgroup.
   Tentative - looking for a pinch-hit facilitator.
   
Christ Lutheran Church
   Hospitality Room
   8011 Old Georgetown Road, Bethesda, MD 20814
   For more info, contact Marielle (301) 718- 9326.
 
  For those with CFS/FMS/OI. Mind-body-spirit Conference Call. 
  Join our email list for the number and code or call 703-968-9818,
  write eggdish-owner@yahoogroups.com or see EGG.
  No fee, but each caller pays his or her own long distance charges. 
 

September 2009

 
"Calming Down in a Fight of Flight World"

  Speaker: Jonathan Gilbert, NCCAOM, Chinese Medicine
  Speaker: Elly Brosius, MS
   Inova Loudoun Hospital
  44045 Riverside Parkway, Leesburg, VA
  Conference room A/B

  For more information, contact CFSupport at 703-968-9818.
  PDF Flyer for Loudoun Group  
 
  • September 8, 2009, 2nd Tues, 12-2 PM:  NOVA Calls of The Heart & Nerves

       By teleconference!!****
      
    No registration required.  
      MVPS/D & OI Group.
      People w/CFS/FMS also welcome since often have overlapping symptoms.
      Free, but any long distances telephone charges apply.
      Sign up for montly reminder emails conference calls and codes at
       mvps-d_oi_nova at Yahoo,
    write mvps-d_oi__nova-owner@yahoogroups.com
       or call
    703-968-9818 or 410-647-7578 for information.
       (CFSupport email members also get reminders with number and code.) 
  
Open House for New Location

Secretary of State John McDonough, will present Pain Connection with a proclamation from Governor Martin O’Malley, proclaiming ‘September as Pain Awareness Month’.

County Executive Ike Leggett will present Pain Connection with a proclamation declaring ‘September as Pain Awareness Month’.

Refreshments!


  12320 Parklawn Drive
  Rockville, MD 20852
  2nd Floor, Room 210

  For info, Pain Connection Support Groups, call (301) 231-0008.
 
Event repeats on the second Saturday of the month.

Woodbridge, VA.
Cindy: (703) 590-6175, woodbridgefibromyalgia@yahoogroups.com
Refreshments. Meetings held in restaurants and people's homes.


  • September 13, 2009, Sunday, 1:30 - 4:30 pm:  National Fibromyalgia Partnership

    "Pain From the Brain -
        Shared symptoms of Fibromyalgia & Traumatic Brain Injury"


    Speakers: Mary Lee Esty, LCSW-C, PhD
    Paul E. Rapp, PhD, and Emily R Perlman, MS, CTRS, SMC-C

    Fairfax County Governental Center - The Board Auditorium
    12000 Governmentt Center Parkway
    Fairfax, VA 22035

    Free.
    To guarantee a copy of seminar handouts, pre-registration is strongly advised.
    Write seminar@fmpartnership.org or National FM Partnership, PO Box 160, Linden, VA 22642.

    3 page flyer with directions: http://www.fmpartnership.org/FM-TBI-1.pdf

       

  • Sep 16, 2009, 3rd Wed, 1 - 2:30 pm: Loudoun Daytime Fibro/CFS Support Group
  Eastern Loudoun (Cascades) Library
  21030 Whitfield Place, Sterling VA 20165. Free.
  Across library from the front door, a smaller room enclosed in glass.
  For information, email Patti or Rowena 
  Also has a Walk & Chat subgroup, a movie going subgroup.
   
  • September 19, 2009, 3rd Sat, 10 am - 12 pm: NOVA CFS/FMS Support Group

      **** SPECIAL MORNING TIME ****

      
    Discussion meeting.
      Sully Governmental Center, James McDonnell Room
      (same building as Sully District Police Station)
      4900 Stonecroft Blvd, Chantilly VA 20151. Free.
      No registration required. (703) 968-9818, (410) 647-7578.
      See also:
    Meetings,  Directions.
     
     
  • September 21, 2009: World Gratitude Day
     
     
  • September 21, 2009, Monday Series, 1:30 - 3 pm: Pain Connection Speakers
  "Physical and Emotional Benefits from Massage Therapy"
  Lee Blank, LMT
  Holiday Park Senior Center, 3950 Ferrara Dr, Wheaton MD 20906
  (240) 777-4999 (directions only)
  For info, Pain Connection Support Groups, call (301) 231-0008.
 
   Christ Lutheran Church
   8011 Old Georgetown Road, Bethesda, MD 20814
   For more info, contact Marielle (301) 718- 9326.
 
  TELECONFERENCE
  For those with CFS, FMS. and/or OI
  A mind-body-spirit discussion Conference Call. 

  Join our email list for the ph number and code or call 703-968-9818,
  write eggdish-owner@yahoogroups.com or see EGG.
  No fee, but each caller pays his or her own long distance charges. 
 

October 2009



  • October 13, 2009, 2nd Tues, 12-2 PM:  NOVA MVPS/ D & OI Support Group 

      By teleconference!!****
      
    No registration required.  
      People w/CFS/FMS also welcome since often have overlapping symptoms.
      Free, but any long distances telephone charges apply.
      Sign up for montly reminder emails conference calls and codes at
       mvps-d_oi_nova at Yahoo,
    write mvps-d_oi__nova-owner@yahoogroups.com
       or call
    703-968-9818 or 410-647-7578 for information.
       (CFSupport email members also get reminders with number and code.)

     
  • October 17, 2009, 3rd Saturday, 2 - 4 pm: NOVA CFS/FMS Support Group

      Speaker: Virginia Mitchell, Acupuncturist voted best in Northern VA
                      of Virginia Bodywork
      Topic: "Non-linear aspects of healing."
     
      Sully Governmental Center, James McDonnell Room
      (same building as Sully District Police Station)
      4900 Stonecroft Blvd, Chantilly, VA 20151. Free.

      No registration required. (703) 968-9818, (410) 647-7578.
      See also:
    Meetings, Speakers.  Directions.

     
     
  • October 20, 2009, Tuesday, 7pm: Bethesda Fibromyalgia/CFS Support Group
   Christ Lutheran Church
   8011 Old Georgetown Road, Bethesda, MD 20814
   For more info, contact Marielle (301) 718- 9326.
  Eastern Loudoun (Cascades) Library
  21030 Whitfield Place, Sterling VA 20165. Free.
  Across library from the front door, a smaller room enclosed in glass.
  For information, email Patti or Rowena 
  Also has a Walk & Chat subgroup, a movie going subgroup.

 
Speaker/Topic: "Herbal Medicine Therapy for people suffering with Chronic Pain"
 Molly Carr, Certified Nurse Practitioner,
    Nutrition Specialist, Herbalist

  Holiday Park Senior Center, 3950 Ferrara Dr, Wheaton MD 20906
  (240) 777-4999 (directions only)
  For info, Pain Connection Support Groups, call (301) 231-0008.
 
Thursday and Friday.

A meeting of the CFS Advisory Committee to the Secretary of Health, held in Washington, D.C. Agenda usually includes health agency updates and public testimony. This meeting is at the

Department of Health and Human Services
Hubert H. Humphrey Building, 200 Independence Avenue, SW, Room 800, Washington, DC 20201.

Photo ID req'd. Open to the public. Pre-registration required for public testimony. Register with Dr. Wanda K. Jones, Executive Secretary, by calling (202) 690-7650 or
e-mailing cfsac@hhs.gov. Public comments will be limited to five minutes per speaker.

You do not have to appear in person. You can send in written testimony and read it over the phone.

The CFIDS Association's meeting reports, dating back to 2003 are available as are
schedule updates, reports via the CFIDSLink.

The agenda will be on the CFSAC web site, 
when it is finalized. http://www.hhs.gov/advcomcfs.

In addition, this meeting will be WebCast at
http://videocast.nih.gov/summary.asp?live=7908
 
  TELECONFERENCE
 

November 2009


  TELECONFERENCE
  For those with CFS, FMS. and/or OI
  A mind-body-spirit discussion Conference Call. 
  Join our email list for the ph number and code or call 703-968-9818,
  write eggdish-owner@yahoogroups.com or see EGG.
  No fee, but each caller pays his or her own long distance charges. 
 

  Speaker: Martha Calihan, MD
  Integrative Medicine

  
Inova Loudoun Hospital
  44045 Riverside Parkway, Leesburg, VA
  Conference room A/B
  (No longer a monthly group.)
  For more information, contact CFSupport at 703-968-9818.
  PDF Flyer for Loudoun Group  
   
  • November 10, 2009, 2nd Tues, 12-2 PM:  NOVA MVPS/ D & OI Support Group 

      By teleconference!!****
      
    No registration required.  
      People w/CFS/FMS also welcome since often have overlapping symptoms.
      Free, but any long distances telephone charges apply.
      Sign up for montly reminder emails conference calls and codes at
       mvps-d_oi_nova at Yahoo,
    write mvps-d_oi__nova-owner@yahoogroups.com
       or call
    703-968-9818 or 410-647-7578 for information.
       (CFSupport email members also get reminders with number and code.)
     
     
     
  • November 12, 2009, Thursday, 11a - 1 pm: WoodbridgeFibromyalgia
 
  Panera Bread at Old Bridge Rd and Prince William Parkway.
  Group has 2 meetings monthly and an email list.
  For info, 703-590-6175 or woodbridgefibromyalgia-owner@yahoogroups.com
 
  "Learning how to lower your pain level
      using various Biofeedback techniques"

  Suburban Hospital
  8600 Old Georgetown Rd.
  Bethesda, MD 20814, Conference Room 6 (Kamerow Room)
  For info, Pain Connection Support Groups, call (301) 231-0008.
 
   Christ Lutheran Church
   8011 Old Georgetown Road, Bethesda, MD 20814
   For more info, contact Marielle (301) 718- 9326.
 
  Eastern Loudoun (Cascades) Library
  21030 Whitfield Place, Sterling VA 20165. Free.
  Across library from the front door, a smaller room enclosed in glass.
  For information, email Patti or Rowena 
  Also has a Walk & Chat subgroup, a movie going subgroup.

 
 
  "Ask the Lawyer-Questions about Chronic Pain and the Law"
  Malcolm Herman, Attorney
  
Holiday Park Senior Center, 3950 Ferrara Dr, Wheaton MD 20906
  (240) 777-4999 (directions only)
  For info, Pain Connection Support Groups, call (301) 231-0008.

 
  TELECONFERENCE
  For those with CFS, FMS. and/or OI
  A mind-body-spirit discussion Conference Call. 
  Join our email list for the ph number and code or call 703-968-9818,
  write eggdish-owner@yahoogroups.com or see EGG.
  No fee, but each caller pays his or her own long distance charges. 
 

December 2009

   Christ Lutheran Church
   8011 Old Georgetown Road, Bethesda, MD 20814
   For more info, contact Marielle (301) 718- 9326.
 
Special speaker meeting:  Dr. Tamara Santa Ana, Chiropractic Physician, practices an integrative approach to health in her ProActive Wellness Center. In addition to the foundational Chiropractic care, the clinic offers many unique and cutting-edge therapies to assist in regaining optimal health. These include Hyperbaric Oxygen, Light-Beam Generator to restore cell electrical health,  Bemer 3000 electromagnetic field therapy, as well as nutritional therapy using frequency analysis. Dr. Santa Ana has directly studied under many leading and well-know physicians in order to gain insight into their healing techniques. For FMS /CFS patients, she applies specific and individual patient techniques as well as those taught to her by Dr. Teitelbaum, author of From Fatigued to Fantastic. She discusses the reasons why people suffer these debilitating illnesses, as well as methods used to obtain healing.
 
  St John's United Methodist Church Hall
  351 E 21st St, Buena Vista VA
  (Off Route 81, near Lexington, VA, north of Roanoke, Lynchburg)
  For more information, call (540) 261-6280 or write Stanzi.
 
  Eastern Loudoun (Cascades) Library
  21030 Whitfield Place, Sterling VA 20165. Free.
  Across library from the front door, a smaller room enclosed in glass.
  For information, email Patti, Rowena, and Adriana
  Also has a Walk & Chat subgroup, a movie going subgroup.
 

 
  • December 19, 2009, 3rd Saturday, 2 - 4:30 pm: NOVA CFS/FMS Support Group

      Discussion meeting and Holiday POTS LUCK Social.
      We'll provide food, too.

      Sully Governmental Center, James McDonnell Room
      (same building as Sully District Police Station)
      4900 Stonecroft Blvd, Chantilly, VA 20151. Free.

      No registration required. (703) 968-9818, (410) 647-7578.
      See also:
    Meetings, Speakers.  Directions.
     

  • December 29, 2009, 2 PM, Tuesday, EST Elly's Gratitude Group for those with CFS/FMS/OI
     
     TELECONFERENCE for EGG
      For those with CFS, FMS. and/or OI
      A mind-body-spirit discussion Conference Call. 
      Join our email list for the ph number and code or call
       703-968-9818, 410-647-7578 for the number,
      write eggdish-owner@yahoogroups.com or see EGG.
      No fee, but callers pays their own long distance charges. 




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Updated November 20, 2009