2010 CFS/FMS/OI Events
in the
US National Capital Area
Northern Virginia (NOVA), Washington, DC, and Suburban MD
(plus national teleconferences and distant events of interest)
CFSupport Meetings - Year
at a Glance
Full Schedule:
Join
CFSupport E-mail list for Email Notices & Reminders
More Event Options
View our
simplified CFSupport .
2010 NOVA CFS/ME, FMS & OI SG
meetings are on
the 3rd Saturdays, 2-4 p.m.
Sully Governmental Center
James McDonnell Room
4900 Stonecroft Road
Chantilly VA 20151
Directions
Free, close
parking. No stairs. Same building as the Sully District
Police Station
Way outside the Capital beltway.
Between Routes 50 and 66,
just west of Route 28 at the Westfields Blvd West exit.
The buidling is at wrong end of Stonecroft than Yahoo, Google, Mapquest and GPS device maps indicate.
Please refrain from wearing scented products.
CFS, CFIDS, M.E. ~ Chronic
Fatigue Syndrome
FM, FMS ~
Fibromyalgia Syndrome
OI ~
Orthostatic
Intolerance (Becoming more symptomatic when upright and still)
POTS ~
Postural Tachycardia
Syndrome
NMH ~
Neurally
Mediated Hypotension
MVPS/D ~
Mitral
Valve Prolapse Syndrome / Dysautonomia
(Also welcome are those with IBS ~ Irritable Bowel Syndrome,
Chronic Lyme, Vulvodynia, similar syndromes and symptoms)
Overview: 2010 NOVA CFS/ME, FMS, OI SG Meeting
Schedule
(3rd Saturday, 2-4 pm, Sully Gov't Center, Chantilly VA. Address & Directions.)
Jan 16 -
Discussion
Feb 20 - DiscussionMar 20 - Social / POTS LuckApr 17 - Discussion
May 12 -
CFS, ME, FMS, CIND Awareness Day May 15 - Joint Hypermobility June 19 - Art Theraplay
July 17 - DVD Showing (on small TV) of CFS/FM film "INVISIBLE"
Aug 21 - Discussion
Sept 18 - Social Security Disability Attorney Mitch Lambros Author Sue Walker of Taming the Fibromyalgia DragonOct 16 - DiscussionNov 20 - Discussion
Dec
18 - Discussion
Discussion
meetings are sometimes rescheduled with speakers, but 2010 is likely to
be a year with few speakers at our in-person meetings according to our
volunteers.
January 2010
"Living
and Loving a Gluten Free Diet"
3345 Duke Street,
Alexandria.
Cost: $20, or 2 people for $35
Pre-registration
is required. (571) 271-8742. Taught by CFSupport member, Cheryl
From Cheryl, "Many
people with FM or CFS report much less joint pain or fatigue when they
avoid gluten. One of my clients put it best when she said that FM was
like alway carrying around a sack of bricks, and when she avoided
gluten, there were fewer bricks to carry around. Gluten is
inflammatory for everyone, but when all systems are functioning
normally, often it's subtle we don't notice. About 1% of people
have Celiac Disease, but somewhere between 10-30% are gluten
intolerant, which pretty much means that there's no good way to test
for it, but people feel better when avoiding gluten. Often people with
FM/CFS who already have fatigue, inflammation, etc. find that gluten
can be a big irritant and lead to more joint pain, depression, muscle
aches, brain fog and general feelings of, well, "full body blahs".
My Glueten Free Diet videos at kaplanclinic.com are a great introduction into why and how eating gluten free may well make you feel better. Class covers:
*
Celiac disease, gluten sensitivity and the importance of testing
* All you ever wanted to know about label reading
* Foods to avoid, cross contamination and hidden gluten
* Sorting out the facts from common myths
* Where to get support-local and online groups, websites,
books
Sully
Governmental Center, James McDonnell Room
(same building as Sully District Police Station)
4900 Stonecroft Blvd, Chantilly VA 20151. Free.
No registration
required. (703)
968-9818, (410) 647-7578.
See also:
Meetings, Speakers. Directions.
Christ Lutheran Church 8011 Old Georgetown Road, Bethesda, MD 20814
Hospitality Room (1st Floor)
For more info, contact Marielle (301) 718- 9326.
Eastern Loudoun (Cascades) Library
21030 Whitfield Place, Sterling VA 20165. Free.
Conference Room B
For information, email Patti
or Rowena or
Adriana
Also has a Walk &
Chat subgroup, a movie going subgroup.
TELECONFERENCE
For those with CFS, FMS. and/or OI
A
mind-body-spirit discussion Conference Call.
Join CFSupport email
list for the
phone number and access code or
call Elly at 703-968-9818, see EGG and EGGdish, or write
eggdish-owner@yahoogroups.com
No
fee. Caller do pay own applicable long
distance rates.
"Exercise, Supplements, & Implantable Therapies for Chronic Pain"
Speaker Michael April, MD Physiatrist & Pain
Specialist, End-Suffering.com
Holiday Park Senior
Center, 3950 Ferrara
Dr, Wheaton MD 20906
(240) 777-4999
(directions only)
For info about Pain Connection,
call (301) 231-0008.
February 2010
Christ Lutheran Church
8011 Old Georgetown Road, Bethesda, MD 20814
Hospitality Room (1st Floor)
For more info, contact Marielle (301) 718- 9326.
Eastern Loudoun
(Cascades) Library
21030 Whitfield Place, Sterling VA 20165. Free.
Conference Room B
For information, email Patti
or Rowena or
Adriana
Also has a Walk &
Chat subgroup, a movie going subgroup.
Discussion meeting. Sully
Governmental Center, James McDonnell Room
(same building as Sully District Police Station)
4900 Stonecroft Blvd, Chantilly VA 20151. Free.
No registration
required. (703)
968-9818, (410) 647-7578.
See also:
Meetings.
Directions.
"Coping, Distracting, and Healing Through Art Therapy"
Tracy Councill, MA, ATR-BC, Art Therapist, of Tracy's Kids Holiday Park Senior
Center, 3950 Ferrara
Dr, Wheaton MD 20906
(240) 777-4999
(directions only)
For info, Pain Connection Support Groups,
call (301) 231-0008.
TELECONFERENCE
For those with CFS, FMS. and/or OI
A
mind-body-spirit discussion Conference Call.
Join CFSupport email
list for the
phone number and access code or
call Elly at 703-968-9818, see EGG and EGGdish, or write
eggdish-owner@yahoogroups.com
No
fee. Caller do pay own applicable long
distance rates.
March 2010
Eastern Loudoun
(Cascades) Library
21030 Whitfield Place, Sterling VA 20165. Free.
Conference Room B
For information, email Patti
or Rowena or
Adriana
Also has a Walk &
Chat subgroup, a movie going subgroup.
Sully
Governmental Center, James McDonnell Room
(same building as Sully District Police Station)
4900 Stonecroft Blvd, Chantilly, VA 20151. Free.
No registration
required. (703)
968-9818, (410) 647-7578.
See also:
Meetings. Directions.
“The Relaxation Response & Gentle Exercise to Boost Your Energy Levels”
Paula Mintzies, PhD, LCSW Holiday Park Senior
Center, 3950 Ferrara
Dr, Wheaton MD 20906
(240) 777-4999
(directions only)
For info, Pain Connection Support Groups,
call 231-0008.
Christ Lutheran Church 8011 Old Georgetown Road, Bethesda, MD 20814
Hospitality Room (1st Floor)
For more info, contact Marielle (301) 718- 9326.
TELECONFERENCE (and a FULL MOON)
For those with CFS, FMS. and/or OI
A
mind-body-spirit discussion Conference Call.
Join CFSupport email
list for the
phone number and access code or
call Elly at 703-968-9818, see EGG and EGGdish, or write
eggdish-owner@yahoogroups.com
No
fee. Caller do pay own applicable long
distance rates.
April 2010
- April
17, 2010, 3rd Saturday, 11 am: Buena
Vista FM-CFS-MCS-Lyme Network
Fleisher speaker meeting postponed until June. Discussion meeting.
April
17, 2010, 3rd Saturday, 2 - 4 pm: NOVA
CFSupport Meeting
Discussion meeting.
Sully
Governmental Center, James McDonnell Room
(same building as Sully District Police Station)
4900 Stonecroft Blvd, Chantilly VA 20151. Free.
No registration
required. (703)
968-9818, (410) 647-7578.
See also:
Meetings.
Directions.
- April
20, 2010, Tues, 7 -
9 pm: Bethesda Fibromyalgia/CFS
Support Group
Christ Lutheran Church
8011 Old Georgetown Road, Bethesda, MD 20814
Hospitality Room (1st Floor)
For more inform, contact Andrea, or
call Marielle (301) 718- 9326.
Eastern Loudoun
(Cascades) Library
21030 Whitfield Place, Sterling VA 20165. Free.
Conference Room B
For information, email Patti
or Rowena or
Adriana
Also has a Walk &
Chat subgroup, a movie going subgroup.
"What is Biofeedback and how can it help my Chronic Pain"
Michael Sitar, PhD
Holiday Park Senior
Center, 3950 Ferrara
Dr, Wheaton MD 20906
(240) 777-4999
(directions only)
For info, Pain Connection Support Groups,
call (301) 231-0008.
TELECONFERENCE
For those with CFS, FMS. and/or OI
A
mind-body-spirit discussion Conference Call.
Join CFSupport email
list for the
phone number and access code or
call Elly at 703-968-9818, see EGG and EGGdish, or write
eggdish-owner@yahoogroups.com
No
fee. Caller do pay own applicable long
distance rates.
May 2010
- For
Worldwide Awareness Day Events around May 12 check
A
meeting of the CFSAC. The agenda usually includes health agency
updates and public
testimony and when finalized will be posted at http://www.hhs.gov/advcomcfs. This meeting is at
the Department of Health & Human Services, Hubert H Humphrey Bldg, 200 Independence Avenue, SW, Room 800, Washington, DC 20201.
Map & Directions.
Meeting will be webcast, videocast.nih.gov, use "Click to Watch." Realplayer is required to view the
videocast. This video will also be archived at the CFSAC website.Photo ID req'd. Open to the public. Pre-registration required
for public testimony by April 26, 2010. Register with Dr. Wanda K. Jones, Executive Secretary, by calling
(202) 690-7650 or e-mailing cfsac@hhs.gov.
Public comments will be limited to *three (3)* minutes per speaker. No
execptions. This is down from 5 minutes in previous meetings. The
Committee is most interested in receiving public comment on the CFSAC
charter at www.hhs.gov/advcomcfs/charter/index.html.You
do not have to appear in person. You can send in written testimony
(limit 5 pages). You can read it over the phone. If you wish to be
identified, ensure that all written testimony includes only your name
and does not include personal contact information. If you wish to
remain anonymous, please notify the CFSAC support team when materials
are submitted to cfsac@hhs.gov.The
CFIDS Association's meeting reports, dating back to 2003 are
available as are schedule
updates, reports via
the CFIDSLink.
Christ Lutheran Church
8011 Old Georgetown Road, Bethesda, MD 20814
Hospitality Room (1st Floor)
For more inform, contact Andrea, or
call Marielle (301) 718- 9326.
Eastern Loudoun
(Cascades) Library
21030 Whitfield Place, Sterling VA 20165. Free.
Conference Room B
For information, email Rowena
Also has a Walk &
Chat subgroup, a movie going subgroup.
"Applying for Disability: What You Should Know"
Alan Nuta, Disability Attorney
Holiday Park Senior
Center, 3950 Ferrara
Dr, Wheaton MD 20906
(240) 777-4999
(directions only)
For info, Pain Connection Support Groups,
call (301) 309-2444.
See
June 1, 2010.
June 2010
TELECONFERENCE - with added Art Theraplay
For those with CFS, FMS. and/or OI
A
mind-body-spirit discussion Conference Call.
Join CFSupport email
list for the
phone number and access code or
call Elly at 703-968-9818, see EGG and EGGdish, or write
eggdish-owner@yahoogroups.com
No
fee. Caller do pay own applicable long
distance rates.
-
June 8, 2010, 2nd
Tues, 12-2 PM: Our Tele-Call of The Nervous Symptoms
Teleconference!!**** w/ added discussion of Calming with Creativity.
No
registration required.
Free,
but any long distances telephone charges apply.
Sign up for montly reminder emails conference calls and codes at
CFSupport at Yahoo,
write cfsupport-owner@yahoogroups.com
or call Elly at 703-968-9818 or Toni at 410-647-7578
for information.
- June 8, 2010, Tues, 2 pm EDT: CFIDS Assoc'n 2010 Webinar Series
The SolveCFS BioBank Speaker: Dr. Suzanne Vernon, Dr. Liz Horn
- June 12, 2010, Sat, 10:30a-12:30 pm: Kaplan Clinic
Lecture by Gary Kaplan, D. O. on "The diagnosis and treatment of Celiac Disease and Thyroid Disorders"(title and online article) Arlington Central Library 1015 N. Quincy Street, Arlington, VA. For directions, please click here and scroll down to the "Getting Here" and "Driving Directions" sections. Free. Call Kaplan Clinic with questions at 703-532-4892. More info: Did
you know that people with Thyroid Disorders have a much higher chance
of developing Celiac Disease than those without Thyroid Disease?
Recent medical research shows that the reverse is also true -- people
with Celiac are much more likely to have issues with their thyroid. Both
illnesses can be difficult to diagnose, but too often, even when
patient is correctly diagnosed with one of these conditions, the other
is overlooked. Why? Because the diseases have so many symptoms in
common (e.g., fatigue, depression, constipation or diarrhea, and weight
gain or loss). Unfortunately, this means that a patient with
Celiac Disease who is being treated for their gluten intolerance might
continue to suffer from many painful symptoms because his or her
undiagnosed Autoimmune Thyroid Disorder remains untreated.
Christ Lutheran Church
8011 Old Georgetown Road, Bethesda, MD 20814
Hospitality Room (1st Floor)
For more
info, contact Marielle (301) 718- 9326.
Eastern Loudoun
(Cascades) Library
21030 Whitfield Place, Sterling VA 20165. Free.
Conference Room B
For information, email Rowena
Also has a Walk &
Chat subgroup, a movie going subgroup.
June 19,
2010, 3rd Saturday,
2 - 4 pm: NOVA
CFSupport Meeting
Discussion/Topic: Creativity for Healing with Art Theraplay
Sully
Governmental Center, James McDonnell Room
(same building as Sully District Police Station)
4900 Stonecroft Blvd, Chantilly VA 20151. Free.
No registration
required. (703)
968-9818, (410) 647-7578.
See also:
Meetings,
Directions.
- June 26, 2010, 3rd Saturday, 11 am: Buena
Vista FM-CFS-MCS-Lyme Network
Mitchell A. Fleisher, M.D., D.Ht., D.A.B.F.M., Dc.A.B.C.T. of Nellysford, VA. St. Johns United Methodist Church in Buena Vista, VA, in the sanctuary. Scent policy in effect (don't wear any scented
products). Confidentiality honored. Dr. Mitchell's Integrative CAM
Homeopathic Family Medicine & Nutritional Therapy practice has for
many years provided natural medical care to very many patients
suffering from CFIDS, Fibromyalgia, MCS, Lyme Disease and related
co-infections. He has utilized individualized, carefully prescribed
programs of constitutional homeopathic medicine, nutritional therapy,
botanical therapy, chelation therapy, bio-oxidative therapy and I.V.
therapies as indicated. For more information email blackpercheron at gmail dot com or call 540-261-6280, leave message. - June 28, 2010, Monday Series,
1:15 - 3 pm: Pain
Connection Speakers
Topic: "Learn how to use your body without straining the parts that hurt" Speaker: Kim Thompson, Movement Specialist
Holiday Park Senior
Center, 3950 Ferrara
Dr, Wheaton MD 20906
(240) 777-4999
(directions only)
For info, Pain Connection Support Groups,
call (301) 231-0008.
TELECONFERENCE with Art Theraplay
For those with CFS, FMS. and/or OI
A
mind-body-spirit discussion Conference Call.
Join CFSupport email
list for the
phone number and access code or
call Elly at 703-968-9818, see EGG and EGGdish, or write
eggdish-owner@yahoogroups.com
No
fee. Caller do pay own applicable long
distance rates.
July 2010
- July 15, 2010, Thurs, 12 pm EDT: CFIDS Assoc'n 2010 Webinar Series
XMRV Update Speakers: Lucinda Bateman, MD and Vincent Rancaniello, PhD
July 17,
2010, 3rd Saturday, 2 - 4 pm: NOVA
CFSupport Meeting
- July
20, 2010, Tuesday, 7 pm: Bethesda &
Silver Spring FM Support Group
Christ
Lutheran Church Hospitality Room
8011 Old Georgetown Road, Bethesda, MD 20814
For more
info, contact Marielle (301) 718- 9326.
Eastern Loudoun
(Cascades) Library
21030 Whitfield Place, Sterling VA 20165. Free. Conference Room B
For information, email Rowena Also has a Walk &
Chat subgroup, a movie going subgroup.
July 27,
2010, 4th Tues, 6 pm: Richmond Fibromyalgia & Chronic Pain Assoc.
"Uncovering Art, Discovering Heart, Recovering Health"
Art is often an integral part of finding symptom relief. Be inspired and encouraged by health caring practitioner Jonathan Gilbert and supporting group leader Elly Brosius for taking your next artful step toward feeling better. Christ Ascension Episcopal Church 1704 W Laburnum Ave Richmond, VA 23227 $2. (804) 862-4244, sue@richmondfibro.org
July 30, 2010, Friday, 1 pm EDT: Elly's
Gratitude Group Tele-Call
TELECONFERENCE
For those with CFS, FMS, and/or OI
A
mind-body-spirit discussion Conference Call.
Join CFSupport email
list for the
phone number and access code or
call Elly at 703-968-9818, see EGG and EGGdish, or write
eggdish-owner@yahoogroups.com
No
fee. Caller do pay own applicable long
distance rates.
August 2010
Christ Lutheran Church Hospitality Room 8011 Old Georgetown Road, Bethesda, MD 20814
For more
info, contact Marielle (301) 718- 9326.
Eastern Loudoun
(Cascades) Library
21030 Whitfield Place, Sterling VA 20165. Free.
Conference Room B
For information, email Rowena
Also has a Walk &
Chat subgroup, a movie going subgroup.
- Aug 19, 2010, Thurs, 1 pm EDT: CFIDS Assoc'n 2010 Webinar Series
Navigating Social Security Disability Speaker: Charles "Mac" Sasser, JD
August 21,
2010, 3rd Saturday,
2 - 4 pm: NOVA
CFSupport Meeting
Discussion meeting or TBD.
Sully
Governmental Center, James McDonnell Room
(same building as Sully District Police Station)
4900 Stonecroft Blvd, Chantilly VA 20151. Free.
No registration
required. (703)
968-9818, (410) 647-7578.
See also:
Meetings,
Directions.
TELECONFERENCE
For those with CFS, FMS, and/or OI
A
mind-body-spirit discussion Conference Call.
Join CFSupport email
list for the
phone number and access code or
call Elly at 703-968-9818, see EGG and EGGdish, or write
eggdish-owner@yahoogroups.com
No
fee. Caller do pay own applicable long
distance rates.
September 2010
Eastern Loudoun
(Cascades) Library
21030 Whitfield Place, Sterling VA 20165. Free.
Conference Room B
For information, email Patti
Patti
Patti
Patti
or Rowena
Also has a Walk &
Chat subgroup, a movie going subgroup.
Topic: "Developing Your Personal Wellness Program" Speaker: Geronima Cortese-Jimenez, RN, Reiki Master
Holiday Park Senior
Center, 3950 Ferrara
Dr, Wheaton MD 20906
(240) 777-4999
(directions only)
For info, Pain Connection Support Groups,
call (301) 231-0008.
Christ Lutheran Church
8011 Old Georgetown Road, Bethesda, MD 20814
For more
info, contact Marielle (301) 718- 9326.
TELECONFERENCE
For those with CFS, FMS, and/or OI
A
mind-body-spirit discussion Conference Call.
Join CFSupport email
list for the
phone number and access code or
call Elly at 703-968-9818, see EGG and EGGdish, or write
eggdish-owner@yahoogroups.com
No
fee. Caller do pay own applicable long
distance rates.
October 2010
-
October
12, 2010,
2nd Tues, 12-2 PM: Our Tele-Call of The Nervous Symptoms
Teleconference!!****
No
registration required.
Free,
but any long distances telephone charges apply.
Sign up for montly reminder emails conference calls and codes at
CFSupport at Yahoo,
write cfsupport-owner@yahoogroups.com
or call Elly at 703-968-9818 or Toni at 410-647-7578
for information.
-
October 16,
2010, 3rd Saturday,
2 - 4 pm: NOVA
CFSupport Meeting
Discussion meeting.
Sully
Governmental Center, James McDonnell Room
(same building as Sully District Police Station)
4900 Stonecroft Blvd, Chantilly, VA 20151. Free.
No registration
required. (703)
968-9818, (410) 647-7578.
See also:
Meetings, Directions.
- October ?, 2010, Tuesday, 7pm: Bethesda
Fibromyalgia/CFS Support Group
Christ Lutheran Church 8011 Old Georgetown Road, Bethesda, MD 20814
For more
info, contact Marielle (301) 718- 9326.
Eastern Loudoun
(Cascades) Library
21030 Whitfield Place, Sterling VA 20165. Free.
Conference Room B
For information, email Rowena
Also has a Walk &
Chat subgroup, a movie going subgroup.
Topic: "Eye Movement Desensitization & Reprocessing (EMDR)" Speaker: Mary French, RN, MSW, LCSW-C
Holiday Park Senior
Center, 3950 Ferrara
Dr, Wheaton MD 20906
(240) 777-4999
(directions only)
For info, Pain Connection Support Groups,
call (301) 231-0008.
A
meeting of the CFS Advisory Committee to the Secretary of Health, held
in
Washington, D.C. Agenda usually includes health agency
updates and public
testimony. This meeting is at
the
Department of Health and Human Services Hubert H. Humphrey
Building, 200 Independence Avenue, SW, Room 800, Washington, DC 20201.
Map & Directions.
Photo ID req'd. Open to the public. Pre-registration required
for public testimony. Register with Dr. Wanda K. Jones, Executive Secretary, by calling
(202) 690-7650 or e-mailing cfsac@hhs.gov. Public comments will be limited to five minutes per speaker.
You do not have to appear in person. You can send in written testimony
and read it over the phone.
The
CFIDS Association's meeting reports, dating back to 2003 are
available as are schedule
updates, reports via
the CFIDSLink.
The agenda will be on the CFSAC web site, when it is finalized. http://www.hhs.gov/advcomcfs.
In addition, this meeting will be WebCast at http://videocast.nih.gov/summary.asp?live=7908
TELECONFERENCE
For those with CFS, FMS, and/or OI
A
mind-body-spirit discussion Conference Call.
Join CFSupport email
list for the
phone number and access code or
call Elly at 703-968-9818, see EGG and EGGdish, or write
eggdish-owner@yahoogroups.com
No
fee. Caller do pay own applicable long
distance rates.
November 2010
TELECONFERENCE For those with
CFS, FMS. and/or OI A
mind-body-spirit discussion Conference Call. Join our email
list for the
ph number and code or
call 703-968-9818, write eggdish-owner@yahoogroups.com
or see EGG.
No fee, but
each caller pays his or her own long
distance charges.
Christ Lutheran Church 8011 Old Georgetown Road, Bethesda, MD 20814
For more
info, contact Marielle (301) 718- 9326.
Eastern Loudoun
(Cascades) Library
21030 Whitfield Place, Sterling VA 20165. Free.
Conference Room B
For information, email Patti
or Rowena
Also has a Walk &
Chat subgroup, a movie going subgroup.
TBA Holiday Park Senior
Center, 3950 Ferrara
Dr, Wheaton MD 20906
(240) 777-4999
(directions only)
For info, Pain Connection Support Groups,
call (301) 231-0008.
TELECONFERENCE
For those with CFS, FMS, and/or OI
A
mind-body-spirit discussion Conference Call.
Join CFSupport email
list for the
phone number and access code or
call Elly at 703-968-9818, see EGG and EGGdish, or write
eggdish-owner@yahoogroups.com
No
fee. Caller do pay own applicable long
distance rates.
December 2010
Christ Lutheran Church
8011 Old Georgetown Road, Bethesda, MD 20814
For more
info, contact Marielle (301) 718- 9326.
Eastern Loudoun
(Cascades) Library
21030 Whitfield Place, Sterling VA 20165. Free.
Conference Room B
For information, email Patti, Rowena, and
Adriana
Also has a Walk &
Chat subgroup, a movie going subgroup.
2011 Coming Attractions...
|