2011 CFS/FMS/OI Events
in the
US National Capital Area
Northern Virginia (NOVA), Washington, DC, and Suburban MD
(plus national teleconferences and distant events of interest)
CFSupport Meetings - Year at a Glance for 2011
2011 Full Schedule:
Join
CFSupport E-mail list for Email Notices & Reminders
Go to current year
View our
simplified CFSupport  .
2011 NOVA CFS/ME, FMS & OI SG
meetings are on
the 3rd Saturdays, 2-4 p.m.
Sully Governmental Center
James McDonnell Room
4900 Stonecroft Road
Chantilly VA 20151
Directions
Free, close
parking. No stairs. Same building as the Sully District
Police Station
Way outside the Capital beltway.
Between Routes 50 and 66,
just west of Route 28 at the Westfields Blvd West exit.
Please refrain from wearing scented products.
CFS, CFIDS, M.E. ~ Chronic
Fatigue Syndrome
FM, FMS ~
Fibromyalgia Syndrome
OI ~
Orthostatic
Intolerance (Becoming more symptomatic when upright and still)
POTS ~
Postural Tachycardia
Syndrome
NMH ~
Neurally
Mediated Hypotension
MVPS/D ~
Mitral
Valve Prolapse Syndrome / Dysautonomia
(Also welcome are those with IBS ~ Irritable Bowel Syndrome,
Chronic Lyme, Vulvodynia, similar syndromes and symptoms)
Overview:
2011 NOVA CFS/ME, FMS, OI SG Meeting Schedule
(3rd Saturday, 2-4 pm, Sully Gov't Center, Chantilly VA. Address & Directions.)
Jan 15 - Speaker: Brian Walitt, MD, MPH, Direction of the new MedStar Health
Fibromyalgia Evaluation and Research Center
Feb 19 - Discussion. One topic: What affects my heart and its symptoms?
Mar 19 - Discussion. One topic: Financial adjustments to being more ill.
Apr 16 - Discussion. One topic: Coping Creatively.
May 12 - Awareness Day
May 21 - Discussion
Jun 18 - Discussion
July 15 - Discussion
Aug 20 - Discussion & guest Michael Bajek with LaserOneTouch devices to try.
Sept 17 - Discussion & Pain Awareness month:
"How to talk more effectively to self, family, friends and practitioners about pain."
Special Guest Sajjad Khan, Ph.D., MSW, LCSW-C from Neuroscience-inc.com
Oct 15 - Discussion & Alexander Technique
Nov 19 - Thanksgiving Social and Social Security Speaker Mitch Lambros
Dec 17 - Discussion
Discussion meetings are sometimes rescheduled with speakers.
January 2011
Speaker: Brian Walitt, MD, MPH, Direction of the new MedStart Health Fibromyalgia Evaluation and Research Center
Sully
Governmental Center, James McDonnell Room
(same building as Sully District Police Station)
4900 Stonecroft Blvd, Chantilly VA 20151. Free.
No registration
required. (703)
968-9818, (410) 647-7578.
See also:
Meetings, Speakers. Directions.
Christ Lutheran Church 8011 Old Georgetown Road, Bethesda, MD 20814
Hospitality Room (1st Floor)
For more info, contact Marielle (301) 718- 9326.
The Corner Bakery, 46290 Cranston St, Sterling, VA. Free.
For information, email Rowena
Also has a Walk &
Chat subgroup, a movie going subgroup.
Lee Blank, LMT
"Physical and Emotional Benefits from Massage Therapy"
Holiday Park Senior
Center, 3950 Ferrara
Dr, Wheaton MD 20906
(240) 777-4999
(directions only)
For info about Pain Connection,
call (301) 231-0008.
TELECONFERENCE
For those with CFS, FMS. and/or OI
A
mind-body-spirit discussion Conference Call.
Join CFSupport email
list for the
phone number and access code
or
call Elly at 703-968-9818, see EGG and EGGdish, or write
eggdish-owner@yahoogroups.com
No
fee. Caller do pay own applicable long
distance rates.
February 2011
Christ Lutheran Church
8011 Old Georgetown Road, Bethesda, MD 20814
Hospitality Room (1st Floor)
For more info, contact Marielle (301) 718- 9326.
The Corner Bakery, 46290 Cranston St, Sterling, VA. Free.
For information, email Patti
or Rowena or
Adriana
Also has a Walk &
Chat subgroup, a movie going subgroup.
Discussion meeting. Sully
Governmental Center, James McDonnell Room
(same building as Sully District Police Station)
4900 Stonecroft Blvd, Chantilly VA 20151. Free.
No registration
required. (703)
968-9818, (410) 647-7578.
See also:
Meetings.
Directions.
Carol Joy Loeb, RN
"Come Relax, Enjoy and Listen to Music from the Harp"
Holiday Park Senior
Center, 3950 Ferrara
Dr, Wheaton MD 20906
(240) 777-4999
(directions only)
For info, Pain Connection Support Groups,
call (301) 231-0008.
TELECONFERENCE
For those with CFS, FMS. and/or OI
A
mind-body-spirit discussion Conference Call.
Join CFSupport email
list for the
phone number and access code
or
call Elly at 703-968-9818, see EGG and EGGdish, or write
eggdish-owner@yahoogroups.com
No
fee. Caller do pay own applicable long
distance rates.
March 2011
Christ Lutheran Church 8011 Old Georgetown Road, Bethesda, MD 20814
Hospitality Room (1st Floor)
For more info, contact Marielle (301) 718- 9326.
The Corner Bakery, 46290 Cranston St, Sterling, VA. Free.
For information, email Rowena
Also has a Walk &
Chat subgroup, a movie going subgroup.
Discussion meeting. Possible topics include finances:
taxes, tax breaks, disability income, other benefits,
products that save time and/ or energy.
Sully
Governmental Center, James McDonnell Room
(same building as Sully District Police Station)
4900 Stonecroft Blvd, Chantilly, VA 20151. Free.
No registration
required. (703)
968-9818, (410) 647-7578.
See also:
Meetings. Directions.
“Increase your Energy, Improve your Balance and
overall Health with Qi Gong”
Patty Feulner, CMT, Certified Qi Gong Instructor
Holiday Park Senior
Center, 3950 Ferrara
Dr, Wheaton MD 20906
(240) 777-4999
(directions only)
For info, Pain Connection Support Groups,
call (301) 231-0008.
TELECONFERENCE (and a FULL MOON)
For those with CFS, FMS. and/or OI
A
mind-body-spirit discussion Conference Call.
Join CFSupport email
list for the
phone number and access code
or
call Elly at 703-968-9818, see EGG and EGGdish, or write
eggdish-owner@yahoogroups.com
No
fee. Caller do pay own applicable long
distance rates.
April 2011
Our NOVA CFS,
FMS & OI Support Group will have host a table.
Reston Town Center
11900 Market St, Reston VA 20190
Sponsored by the Sjorgren's
Syndrome Foundation (800) 475-6473
In
addition to support groups having tables, there will be booths
by
practitioners and agencies and Interactive Exhibits.
- April 7-8, 2011, Thursday-Friday: NIH State of the Knowledge for CFS
To Register, see
https://www.infinityconferences.com/InfiniBase/Templates/157557/Index.htm
Trans-NIH ME/CFS Research Working Group
Listserv (NIH_MECFS_WG-L)
NIH Campus, Bethesda, MD
To join the Listserv and get updates, send an email from your preferred computer address to LISTSERV@LIST.NIH.GOV
The text of the message should read: SUBSCRIBE NIH_MECFS_WG-L {YOUR FIRSTNAME AND LASTNAME}
You will then receive an email and must confirm your desire to join the list. You can unsubscribe from the list at any time.
- April 11, 2011, Monday Series,
1:15 - 2:45 pm: Pain
Connection Speakers
"Improve your health with proper Nutrition and Herbs" Margo Gladding, MS, Herbalist, Nutritionist, of
Village Green
Apothocary. Holiday Park Senior
Center, 3950 Ferrara
Dr, Wheaton MD 20906 (240) 777-4999
(directions only) For info, Pain Connection Support Groups,
call (301) 231-0008.
Christ Lutheran Church
8011 Old Georgetown Road, Bethesda, MD 20814
Hospitality Room (1st Floor)
For more inform, contact Andrea, or
call Marielle (301) 718- 9326.
Location varies.
For information, email Rowena.
Also has a Walk &
Chat subgroup, a movie going subgroup.
TELECONFERENCE
For those with CFS, FMS. and/or OI
A
mind-body-spirit discussion Conference Call.
Join CFSupport email
list for the
phone number and access code
or
call Elly at 703-968-9818, see EGG and EGGdish, or write
eggdish-owner@yahoogroups.com
No
fee. Caller do pay own applicable long
distance rates.
May 2011
- For
Worldwide Awareness Day Events around May 12 check
A
meeting of the CFSAC. The agenda usually includes health agency
updates and public
testimony and when finalized will be posted at http://www.hhs.gov/advcomcfs. This meeting is at
the Department of Health & Human Services, Hubert H Humphrey Bldg, 200 Independence Avenue, SW, Room 800, Washington, DC 20201.
Map & Directions.
Meeting will be webcast, videocast.nih.gov, use "Click to Watch." Realplayer is required to view the
videocast. This video will also be archived at the CFSAC website.Photo ID req'd. Open to the public. Pre-registration required
for public testimony by April 18, 2011. Register with Dr. Wanda K. Jones, Executive Secretary, by e-mailing cfsac@hhs.gov.
Public comments will be limited to five minutes per speaker. No
execptions. You
do not have to appear in person. You can send in written testimony
(limit 5 pages). You can read it over the phone. If you wish to be
identified, ensure that all written testimony includes only your name
and does not include personal contact information. If you wish to
remain anonymous, please notify the CFSAC support team when materials
are submitted to cfsac@hhs.gov.
Federal Register Notice with more details.The
CFIDS Association's meeting reports, dating back to 2003 are
available as are schedule
updates, reports via
the CFIDSLink.
- May 12, 2011: International CFIDS, FM, CIND
Awareness Day
May 12, 2011, Thursday, : P.A.N.D.O.R.A Lobby Days 2011, Washington, DC.
The
Patient Alliance for NeuroEndocrineImmune Disorders Organization for
Research and Advocacy, Inc., PANDORA, has hired Michelle Lonchar as an
advocacy coordinator for NeuroEndocrineImmune patients participating in
May 12 ME/CFS & FM Awareness Day and Lobby Day. These include
patients with myalgic encephalomyelitis / chronic fatigue syndrome
(ME/CFS), fibromyalgia, Gulf War illness, multiple chemical sensitivity
and chronic Lyme disease.One feature of this year's activities
will be the "Speak about ME" grassroots effort to show legislators that
NeuroEndocrineImmune diseases also afflict children. PANDORA will give
assistance to these advocates through its Advocates Extraordinaire™
program.To participate contact Michelle Lonchar at mlonchar@pandoranet.info and/orSign up for newsletters / e-mails at pandorainfo.net to be kept informed.P.A.N.D.O.R.A on Facebook - May 13-14,
2011,
Fri-Sat: Fibromyalgia
Coalition International's
10th Annual FM & Chronic Fatigue Awareness Conference
Location varies.
For information, email Rowena Also has a Walk &
Chat subgroup, a movie going subgroup.
Christ Lutheran Church
new date and room! 8011 Old Georgetown Road, Bethesda, MD 20814 Small Prayer Room (2nd Floor)
For more information, contact Marielle (301) 718- 9326.
"Diagnosing and Treating Pain"
Michael April, MD, Physiatrist and Pain specialist
Holiday Park Senior
Center, 3950 Ferrara
Dr, Wheaton MD 20906
(240) 777-4999
(directions only)
For info, Pain Connection Support Groups,
call (301) 309-2444.
See
June 1, 2011.
June 2011
TELECONFERENCE - with added Art Theraplay
For those with CFS, FMS. and/or OI
A
mind-body-spirit discussion Conference Call.
Join CFSupport email
list for the
phone number and access code
or
call Elly at 703-968-9818, see EGG and EGGdish, or write
eggdish-owner@yahoogroups.com
No
fee. Caller do pay own applicable long
distance rates.
"Fibromyalgia and Chronic Fatigue Syndrome with Dr. Enlander"Dr. Derek Enlander
is an internist who has a special interest in Fibromyalgia and Myalgic
Encephalomyelitis (ME, often referred to as chronic fatigue syndrome).
He is presently in private practice in New York City, and is on the
faculty of the Mount Sinai Medical School, in addition to serving as as
President of the Israel Medical Foundation. Dr. Enlander will
discuss the Xenotropic murine leukemia virus-related virus (XMRV) and
his current treatment plans, including Hepapressin, an amino acid
complex, as well as immunotherapy with Ampligen and Gc protein-derived
macrophage activating factor (Gcmaf).The venue is accessible by Metro (free circulator bus from Bethesda Metro) and by bus (Ride-On number 34). Christ Evangelical Lutheran Church, Luther Hall 8011 Old Georgetown Road, Bethesda, MD 20814
For more
info, contact Marielle (301) 718- 9326.
Christ Lutheran Church
8011 Old Georgetown Road, Bethesda, MD 20814
Hospitality Room (1st Floor)
For more
info, contact Marielle (301) 718- 9326.
For information and location, email Rowena
Also has a Walk &
Chat subgroup, a movie going subgroup.
Topic: "Feeling Stressed?
Learn how to Relax with Body Mediation
Speaker: Mary Lou Bowers, RN, LCSW, and
Gail Waldman, Meditation specialist, Relationship coach
Holiday Park Senior
Center, 3950 Ferrara
Dr, Wheaton MD 20906
(240) 777-4999
(directions only)
For info, Pain Connection Support Groups,
call (301) 231-0008.
TELECONFERENCE swith Art Theraplay
For those with CFS, FMS. and/or OI
A
mind-body-spirit discussion Conference Call.
Join CFSupport email
list for the
phone number and access code
or
call Elly at 703-968-9818, see EGG and EGGdish, or write
eggdish-owner@yahoogroups.com
No
fee. Caller do pay own applicable long
distance rates.
July 2011
Christ
Lutheran Church
Hospitality Room
8011 Old Georgetown Road, Bethesda, MD 20814
For more
info, contact Marielle (301) 718- 9326.
For information and locaion, email Rowena Also has a Walk &
Chat subgroup, a movie going subgroup.
TELECONFERENCE
For those with CFS, FMS, and/or OI
A
mind-body-spirit discussion Conference Call.
Join CFSupport email
list for the
phone number and access code
or
call Elly at 703-968-9818, see EGG and EGGdish, or write
eggdish-owner@yahoogroups.com
No
fee. Caller do pay own applicable long
distance rates.
August 2011
Christ Lutheran Church Hospitality Room 8011 Old Georgetown Road, Bethesda, MD 20814
For more
info, contact Marielle (301) 718- 9326.
For information and location, email Rowena
Also has a Walk &
Chat subgroup, a movie going subgroup.
TELECONFERENCE
For those with CFS, FMS, and/or OI
A
mind-body-spirit discussion Conference Call.
Join CFSupport email
list for the
phone number and access code
or
call Elly at 703-968-9818, see EGG and EGGdish, or write
eggdish-owner@yahoogroups.com
No
fee. Caller do pay own applicable long
distance rates.
September 2011
"From Research to Clinical Practice"
Speakers:
Senator Jamie Raskin (unconfirmed)
Dr. Jay Shah, NIH, Physiatrist,
"New Scientific Research on Myofascial Pain”
Gary Kaplan, DO, "Treating Depression and Chronic Pain"
Alan Pocinki, MD, "Diagnosing & Treating Chronic Fatigue Syndrome"
For patients and professionals.
CME Credits for professionals. Rockville, MD For info and registration fee,
call Pain Connection at (301) 231-0008 or check
http://www.painconnection.org/updates/painawareness2011.html
For information and location, email Rowena Also has a Walk &
Chat subgroup, a movie going subgroup.
- September
21, 2011: World Gratitude Day
Christ Lutheran Church
8011 Old Georgetown Road, Bethesda, MD 20814
For more
info, contact Marielle (301) 718- 9326.
The IACFS/ME 10th International Clinical and Research Conference,
hosted this time by The National ME/FM ACTION Network:
"Translating Evidence into Practice"
Ottawa, Canada
Conference Details at MEFMAction.com
The Patient Conference is September 22nd.
The Research and Clinical Conference is September 23rd-25th.
"History, Imagery, & Substance of Chinese Medicine -
Creating Physical, Mental, & Emotional Wellbeing"
Non-members $40; senior and student $25.
Institute of Spiritual Development, Washington, DC.
Speaker: Jonathan Gilbert of The Gilbert Clinic, 301-215-4177.
Register at
Jung Society Event page
, or call (202) 237-8109.
Printable Flyer
Topic: "Learn to use the Relaxation Response and Energy Medicine" Speaker: Paula Mintzies, DSW, LCSW Holiday Park Senior
Center, 3950 Ferrara
Dr, Wheaton MD 20906 (240) 777-4999
(directions only) For info, Pain Connection Support Groups,
call (301) 231-0008.
TELECONFERENCE
For those with CFS, FMS, and/or OI
A
mind-body-spirit discussion Conference Call.
For e-reminders of
phone number and access code, join EGGdish.
For info call Elly at 703-968-9818, or write
eggdish-owner@yahoogroups.com
No
fee. Callers do pay their own applicable long
distance rates.
October 2011
-
October 11, 2011, 2nd Tues, 12-2 PM:
Tele-Call:
The Art of Healing Dysautonomia with Gratitude & Friends
-
October 15, 2011, 3rd Saturday: 2 - 4 pm
NOVA CFSupport Meeting
Discussion, including Alexander Technique and "how we hold ourselves."
Sully Governmental Center, James McDonnell Room
(same building as Sully District Police Station)
4900 Stonecroft Blvd, Chantilly, VA 20151. Free.
No registration required.
(703) 968-9818, (410) 647-7578.
See also: Meetings, Directions.
-
October 16, 2011, Sunday, 11:30am - 5pm:
NJ CFS Association Fall Conference
"New Horizons in Public Health, Treatment & Diagnosis of CFS"
For more info, see www.njcfsa.org
or call the NJCFSA Informational Help Line 888-835-3677. Non-member conference registration is $40.
CME Credit available.
Event Brochure with registration form.
For information and location, email
Rowena
Also has a Walk & Chat subgroup, a movie going subgroup
Topic: “Learn to use the Emotional Freedom Technique (EFT)
a self-acupressure technique mixed with speaking
positive affirmations.” For pain as well as emotional issues.
Speaker: Lisa Marie Price, Acupuncturist
Holiday Park Senior Center, 3950 Ferrara Dr, Wheaton MD 20906
(240) 777-4999 (directions only)
For info, Pain Connection Support Groups, call (301) 231-0008.
Christ Lutheran Church
8011 Old Georgetown Road, Bethesda, MD 20814
For Bethesda group contact info, Email Us
TELECONFERENCE - for those with CFS, FMS, and/or OI.
The EGG call is a mind-body-spirit telephone support group focusing
on the practice and benefits of gratitude.
Join Yahoo group EGGdish for date and dial-in info reminders,
for a place to practice writing gratitude for healing.
Call Elly at 703-968-9818 or write
eggdish-owner@yahoogroups.com
No fee. Callers pay own applicable long distance rates.
For more info, see EGG.
November 2011
TELECONFERENCE - for those with CFS, FMS, and/or OI.
The EGG call is a mind-body-spirit telephone support group focusing
on the practice and benefits of gratitude.
Join Yahoo group EGGdish for date and dial-in info reminders,
for a place to practice writing gratitude for healing.
Call Elly at 703-968-9818 or write
eggdish-owner@yahoogroups.com
No fee. Callers pay own applicable long distance rates.
For more info, see EGG.
Agenda is being developed
Holiday Inn Capitol, Columbia Room, 550 C Street, S.W., Washington, D.C. 20024. Hotel phone number: 202-479-4000.
Direct all inquires to Nancy C. Lee, MD, Designated Federal Officer: cfsac@hhs.gov.
The meeting will be recorded and archived for on-demand viewing through the CFSAC web site. It will be available by audio on both days and the call-in numbers will be posted on the CFSAC Web site. Public attendance at the meeting is open. Those attending will need to sign-in prior to entering (bring ID). Members of the public will have the opportunity to provide oral testimony on both days of the meeting; pre-registration for oral testimony is required by Wednesday, October 26, 2011.
Time slots for public comment will be available on a first-come, first-served basis and will be limited to five minutes per speaker; no exceptions will be made. Priority will be given to individuals who have not presented public comment at previous CFSAC meetings. Individuals registering for public comment should submit a copy of their oral testimony in advance. More details
Video link:
http://videocast.nih.gov/
Read more about The CFSAC at CFIDS.org
Christ Lutheran Church
8011 Old Georgetown Road, Bethesda, MD 20814
For Bethesda group contact info, Email Us
For information and location, email
Rowena
Also has a Walk & Chat subgroup, a movie going subgroup
Thanksgiving Meal (catered with Moe's Fajita Bar) +
"Applying for Social Security Disability Benefits"
Speaker: Mitch Lambros, JD
Also, Massage Therapist Renee Stenbjorn to demo technique.
Sully Governmental Center, James McDonnell Room
(same building as Sully District Police Station)
4900 Stonecroft Blvd, Chantilly, VA 20151. Free.
No registration required. (703) 968-9818, (410) 647-7578.
See also: Meetings, Directions.
Topic: “Pain and the Law"
Speaker: Malcolm P. Herman, Attorney
Holiday Park Senior Center, 3950 Ferrara Dr, Wheaton, MD 20906
(240) 777-4999 (directions only)
For info, Pain Connection Support Groups, call (301) 231-0008.
TELECONFERENCE - for those with CFS, FMS, and/or OI.
The EGG call is a mind-body-spirit telephone support group focusing
on the practice and benefits of gratitude.
Join Yahoo group EGGdish for date and dial-in info reminders,
for a place to practice writing gratitude for healing.
Call Elly at 703-968-9818 or write
eggdish-owner@yahoogroups.com
No fee. Callers pay own applicable long distance rates.
For more info, see EGG.
December 2011
Christ Lutheran Church
8011 Old Georgetown Road, Bethesda, MD 20814
For Bethesda group contact info, Email Us
For information and location, email
Rowena
Also has a Walk & Chat subgroup, a movie going subgroup
Discussion Meeting + Coping with Holidays
Sully Governmental Center, James McDonnell Room
(same building as Sully District Police Station)
4900 Stonecroft Blvd, Chantilly, VA 20151. Free.
No registration required. (703) 968-9818, (410) 647-7578.
See also: Meetings, Directions.
TELECONFERENCE - for those with CFS, FMS, and/or OI.
The EGG call is a mind-body-spirit telephone support group focusing
on the practice and benefits of gratitude.
Join Yahoo group EGGdish for date and dial-in info reminders,
for a place to practice writing gratitude for healing.
Call Elly at 703-968-9818 or write
eggdish-owner@yahoogroups.com
No fee. Callers pay own applicable long distance rates.
For more info, see EGG.
2012 Coming Attractions...
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