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2010 News Coverage

CFS / CFIDS / ME - Chronic Fatigue Syndrome
FM / FMS / Fibro - Fibromyalgia Syndrome
OI / POTS / NMH / MVPS/D - Orthostatic Intolerance Dysautonomias
IBS / IC / MCS / GWI / ... - Overlapping Syndromes, Symptoms to CFS/FM/OI

Table of Contents

 

Selected Recent News (CFS, MCS, FM, ME, POTS, NMH, MVPS, OI, IBS, Lyme, sleep, etc)

  • Migraines, memory loss: Was it all in his head? Medical Mystery, Washington Post -  2-16-10
    By 2007 Adam began complaining of intermittent dizziness and a headache, particularly when he got out of bed in the morning. The neurologist thought he might be showing signs of a condition called POTS -- postural orthostatic tachycardia syndrome -- an imbalance of the autonomic nervous system, which controls blood flow to various parts of the body. POTS patients have impaired circulation, and the disorder is characterized by a rapid rise in heart rate and a drop in blood pressure upon standing.

    The cause of POTS, which is not well understood, is unknown. The condition typically occurs in females between 15 and 50, sometimes after a pregnancy, trauma or viral illness, according to the National Institutes of Health. POTS patients often faint, but Adam did not. And a key diagnostic test for POTS called a tilt-table test -- it involves strapping a patient to a table that is tilted while blood pressure and heart rate are monitored -- was negative, Karen Hammerman was told, because Adam's blood pressure did not fluctuate.

    Another neurologist told Karen Hammerman that some of his symptoms could be caused by POTS but that he had never seen a POTS patient with memory loss. "He said we should dial down the dialogue: 'If you stop talking about it, he'll stop paying attention to it.' " Said Hammerman, "We ignored it for two weeks, and he got worse."

    Adam remembers little from those months. "I remember I was scared, but I wasn't freaking out every single day," he said. "I did get a little sick of going to all the doctors, but I kept hoping one would figure it out."

    She kept coming back to one episode: For a year Adam had been counting down the days until he was old enough to get his learner's permit. But over the summer he told his mother he needed to stop driving because something was really wrong with him. Why would a 16-year-old boy sabotage that, she wondered.

    "These kids are so badly affected because everyone thinks they're lying. Some go from doctor to doctor and become depressed and isolated," he said. "And parents suffer along with their kids."
  • XMRV not found in 170 additional UK chronic fatigue syndrome patients  Virology Blog -  2-15-10
  • Mother cleared of ME daughter's attempted murder  BBC News -  1-15-10
    A mother has been found not guilty of the attempted murder of her severely ill daughter who suffered from ME.
  • Doctors, school, friends thought I was faking chronic fatigue syndrome  Times Online, UK - ‎1-25-10‎
    As the trial of Kay Gilderdale puts ME back in the spotlight, we ask why more is not being done to help sufferers.
  • Seconds out - A fight over the cause of a mysterious disease  The Economist -  1-7-10
    The new year, though, has brought new complications, in the form of a study that has been unable to replicate Dr Mikovits’s work. Writing in the Public Library of Science, Otto Erlwein of Imperial College, London, and his colleagues report that they are unable to find XMRV in any of almost 200 CFS patients in Britain.
    One possible explanation is that one of the two groups of scientists made a mistake in their testing, something that both are adamant is not the case. As scientific punch-ups go, this is shaping up to be a good one, with blows (albeit polite ones) being thrown across the Atlantic.
  • Scientist Smackdown: Is a Virus Really the Cause of Chronic Fatigue Syndrome?  Discover Magazine -  1-6-2010
  • Chronic Fatigue Syndrome Attacked Again Science Magazine -  1-6-2010
  • Woman finds relief from fibromyalgia pain   Suburban Chicagonews.com -  1-6-2010
    Quest inspires Cherie Stechly to write book
    With the assistance of a supportive physician -- Dr. R.W. Schubert of Joliet, who also wrote a forward to Stechly's book -- Stechly reviewed her life history of illnesses, her environment and her lifestyle practices. She then overcame her symptoms through researching possible antidotes, which included dietary changes, stress reduction, practicing a positive attitude, applying spiritual principles, adding vitamins and herbal remedies. Stechly said her fibromyalgia is now in full remission.
    "I took full responsibility for my illness and it was not easy," Stechly said. "I was relentless in searching for a cure for me. I did not take a single day off. I have five shelves at home full of books and I learned about how every part of my body worked."
  • Hidden Sensory System Discovered in the Skin Science Daily -  12-14-09
    The answer appeared to be in the presence of sensory nerve endings on the small blood vessels and sweat glands embedded in the skin. "For many years, my colleagues and I have detected different types of nerve endings on tiny blood vessels and sweat glands, which we assumed were simply regulating blood flow and sweating. We didn't think they could contribute to conscious sensation. However, while all the other sensory endings were missing in this unusual skin, the blood vessels and sweat glands still had the normal types of nerve endings. Apparently, these unique individuals are able to 'feel things' through these remaining nerve endings," said Dr. Rice. "What we learned from these unusual individuals is that there's another level of sensory feedback that can give us conscious tactile information. Problems with these nerve endings may contribute to mysterious pain conditions such as migraine headaches and fibromyalgia, the sources of which are still unknown, making them very difficult to treat."
  • Discovery sheds light on a medical mystery  The Daily News Online -  12-12-09
    Twenty-five years ago, more than 200 people in rural Western New York came down with a mysterious
    ailment with symptoms such as achy joints, muscle weakness, digestive upset, insomnia, clouded
    thinking and exhaustion.The practice of Dr. David S. Bell of Lyndonville was inundated with patients who were all ill in the same way. "Just a lot of my patients came in with mono that didn't get better," he said.   ... [XMRV's discovery]'s one of the main reasons Bell is trying to find all 61 of his former patients.
  • CFS - Dr Oz Tv Show You Tube -  12-3-09

Selected Press Releases


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Updated January 25,  2010