2010 News Coverage
CFS / CFIDS / ME - Chronic Fatigue Syndrome
FM / FMS / Fibro - Fibromyalgia Syndrome
OI / POTS / NMH / MVPS/D - Orthostatic Intolerance Dysautonomias
IBS / IC / MCS / GWI / ... - Overlapping Syndromes, Symptoms to CFS/FM/OI
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Selected Recent News (CFS, MCS, FM, ME, POTS, NMH, MVPS, OI, IBS, Lyme, sleep, etc)
- Migraines, memory loss: Was it all in his head? Medical Mystery, Washington Post - 2-16-10
By
2007 Adam began complaining of intermittent dizziness and a headache,
particularly when he got out of bed in the morning. The neurologist
thought he might be showing signs of a condition called POTS --
postural orthostatic tachycardia syndrome -- an imbalance of the
autonomic nervous system, which controls blood flow to various parts of
the body. POTS patients have impaired circulation, and the disorder is
characterized by a rapid rise in heart rate and a drop in blood
pressure upon standing.
The cause of POTS, which is not well
understood, is unknown. The condition typically occurs in females
between 15 and 50, sometimes after a pregnancy, trauma or viral
illness, according to the National Institutes of Health. POTS patients
often faint, but Adam did not. And a key diagnostic test for POTS
called a tilt-table test -- it involves strapping a patient to a table
that is tilted while blood pressure and heart rate are monitored -- was
negative, Karen Hammerman was told, because Adam's blood pressure did
not fluctuate.
Another neurologist told Karen Hammerman that
some of his symptoms could be caused by POTS but that he had never seen
a POTS patient with memory loss. "He said we should dial down the
dialogue: 'If you stop talking about it, he'll stop paying attention to
it.' " Said Hammerman, "We ignored it for two weeks, and he got worse."
Adam
remembers little from those months. "I remember I was scared, but I
wasn't freaking out every single day," he said. "I did get a little
sick of going to all the doctors, but I kept hoping one would figure it
out."
She kept coming back to one episode: For a year Adam had
been counting down the days until he was old enough to get his
learner's permit. But over the summer he told his mother he needed to
stop driving because something was really wrong with him. Why would a
16-year-old boy sabotage that, she wondered.
"These kids are so
badly affected because everyone thinks they're lying. Some go from
doctor to doctor and become depressed and isolated," he said. "And
parents suffer along with their kids." - XMRV not found in 170 additional UK chronic fatigue syndrome patients Virology Blog - 2-15-10
- Mother cleared of ME daughter's attempted murder BBC News - 1-15-10
A mother has been found not guilty of the attempted murder of her severely ill daughter who suffered from ME. - Doctors, school, friends thought I was faking chronic fatigue syndrome Times Online, UK - 1-25-10
As the trial of Kay Gilderdale puts ME back in the spotlight, we ask why more is not being done to help sufferers.
- Seconds out - A fight over the cause of a mysterious disease The Economist - 1-7-10
The
new year, though, has brought new complications, in the form of a study
that has been unable to replicate Dr Mikovits’s work. Writing in the
Public Library of Science, Otto Erlwein of Imperial College, London,
and his colleagues report that they are unable to find XMRV in any of
almost 200 CFS patients in Britain. One possible explanation is that
one of the two groups of scientists made a mistake in their testing,
something that both are adamant is not the case. As scientific
punch-ups go, this is shaping up to be a good one, with blows (albeit
polite ones) being thrown across the Atlantic. - Scientist Smackdown: Is a Virus Really the Cause of Chronic Fatigue Syndrome? Discover Magazine - 1-6-2010
- Chronic Fatigue Syndrome Attacked Again Science Magazine - 1-6-2010
- Woman finds relief from fibromyalgia pain Suburban Chicagonews.com - 1-6-2010
Quest inspires Cherie Stechly to write book With
the assistance of a supportive physician -- Dr. R.W. Schubert of
Joliet, who also wrote a forward to Stechly's book -- Stechly reviewed
her life history of illnesses, her environment and her lifestyle
practices. She then overcame her symptoms through researching possible
antidotes, which included dietary changes, stress reduction, practicing
a positive attitude, applying spiritual principles, adding vitamins and
herbal remedies. Stechly said her fibromyalgia is now in full remission. "I
took full responsibility for my illness and it was not easy," Stechly
said. "I was relentless in searching for a cure for me. I did not take
a single day off. I have five shelves at home full of books and I
learned about how every part of my body worked." - Hidden Sensory System Discovered in the Skin Science Daily - 12-14-09
The
answer appeared to be in the presence of sensory nerve endings on the
small blood vessels and sweat glands embedded in the skin. "For many
years, my colleagues and I have detected different types of nerve
endings on tiny blood vessels and sweat glands, which we assumed were
simply regulating blood flow and sweating. We didn't think they could
contribute to conscious sensation. However, while all the other sensory
endings were missing in this unusual skin, the blood vessels and sweat
glands still had the normal types of nerve endings. Apparently, these
unique individuals are able to 'feel things' through these remaining
nerve endings," said Dr. Rice. "What we learned from these unusual
individuals is that there's another level of sensory feedback that can
give us conscious tactile information. Problems with these nerve
endings may contribute to mysterious pain conditions such as migraine
headaches and fibromyalgia, the sources of which are still unknown,
making them very difficult to treat." - Discovery sheds light on a medical mystery The Daily News Online - 12-12-09
Twenty-five years ago, more than 200 people in rural Western New York came down with a mysterious ailment with symptoms such as achy joints, muscle weakness, digestive upset, insomnia, clouded thinking
and exhaustion.The practice of Dr. David S. Bell of Lyndonville was
inundated with patients who were all ill in the same way. "Just a lot
of my patients came in with mono that didn't get better," he said.
... [XMRV's discovery]'s one of the main reasons Bell is trying
to find all 61 of his former patients. - CFS - Dr Oz Tv Show You Tube - 12-3-09
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