The Northern Virginia (NOVA)
CFS/ME, FMS & OI
Support Group

Northern Virginia, Washington DC, and Suburban Maryland CFS/FM/OI Groups

• CFSupport - Northern VA CFS/ME, FMS, OI Support Group    
  [Founders of this site!]
  NOVA CFS/ME, FMS, & OI Support Group
  14404 Brookmere Drive
  Centreville VA 20120-4107 USA
  Phone: (703) 968-9818 - Elly Brosius
  Phone: (410) 647-7578 - Toni Marshall
  Web 1: http://www.cfsnova.com/ (One click Spanish Translation! New address 2009)
  Web 2 for yahoo email, etc: http://health.groups.yahoo.com/group/CFSupport
  Email: CFSupport-owner@yahoogroups.com
  To subscribe, see web or send blank email to CFSupport-subscribe@yahoogroups.com
  Meetings: 2010: 3rd Saturday of each month, 2-4pm,
  Sully Governmental Center
  4900 Stonecroft Blvd, Chantilly, VA 20151. See also list of Events.
  Use our directions!
  
  Click here for 2010 Schedule
  
  
   
• Elly's Gratitude Group (EGG)
  A volunteer and peer led discussion group for people with CFS, FMS and OI, focusing on the healing power of gratitude to transform hearts, health, and life with debilitating conditions. We practice appreciation to accelerate healing. Monthly meetings by US national teleconferences. Callers only pay for their own long distance charges, use free minutes, or a phone card. Occasional in person locations include Northern VA and suburban DC restaurants and libraries. Dates and times also vary and are announced via the Events page, EGGdish Y! group e-mail, and our EGG Resources Page. Call Elly  703-968-9818 or Toni (410) 647-7578.
  
  
  
• Bethesda Fibromyalgia / CFS Support Group
  Email: Marielle
  Phone: (301) 718-9326, Marielle.
  Meetings: Christ Lutheran Church, 8011 Old Georgetown Road, Bethesda MD 20814
                   Hospitality Room (1st Floor).
  Contact Marielle for 2010 Dates.
  (Note: this group used to meet at Holy Cross Hosp, then Bethesda Library.)
  
  
• DC Fibro FM Support Group      (added Oct 2009) 
  Contact: Melissa Porter
  Email: melissa@dcfibro.com
  Web: www.dcfibro.com
  Forum: www.dcfibro.com/forum
  Meetings: Gaithersburg, MD, Library
  Currenlty we are working on designing our site.  However, we can start a conversation now.  We have set up a forum so that we can share our thoughts and experiences and begin a virtual online support group.  I hope we can have some great conversations about the many aspects of Fibromyalgia.
  
  
  

• Woodbridge FM & CFIDS Social Group
  Email: woodbridgefibromyalgia-owner@yahoogroups.com
  Web: http://health.groups.yahoo.com/group/woodbridgefibromyalgia/
  A social group that meets via email list and occasionally at people's homes or public places. (Started 2007)
  
  
  
  
• FM & Arthritis Support Group       
  Contact: Maxine Henry
  Phone: (703) 451-4558
  Regular meetings suspended... now meet occasionally. Call for details.
  
  
  
• CFIDS Network of Baltimore
  Phone: 410-368-3330, St Agnes Healthcare.
  Web: http://cfidsbaltmd.tripod.com
  Email:
  Meetings: Meets 4 times/year. Meetings are held at St. Agnes Hospital at 12 p.m. St. Agnes Hospital is at Wilkens Ave & Caton Ave in Arbutus, MD. 2008 Meetings:
  Jan 12 -  Rm A,  Mar 29 & Jun 14 - Alagia Auditorium; Sep 13 - Community Rm A
  
  
  
• Maryland Bay Area CFS/FM/OI Support
  Contact: Toni Marshall, 275 Greenleaf Circle, Arnold MD 21012
  Phone: 410-647-7578
  Email: CFSupport-owner@yahoogroups.com
  Web: http://www.geocities.com/cfsnova/marylandoicfsfms.html
  
  
  
• FMS Support Group of Reston, VA - No longer meets. 
  

• (Loudoun) Fibro/CFS/ME Daytime Support Group
  Contacts:
  Rowena Beatty
  
  Meetings: 2010: The 3rd Wednesday of the month from 1 to 2:30 p.m. in Conference  Room B at Cascades Library (Eastern Loudoun), 21030 Whitfield Pl, Sterling, VA 20165. (703) 444-3228.  Please feel free to bring others who are interested. Meetings are open - come to as many or as few as you like.  Group also has a "Walk and Chat" subgroup and a movie going subgroup.
   
   
• Loudoun CFS & FM / Pain Management Seminar Group 
  Ended Nov 2009
  
  
  
  
• Manassas Chronic Pain Meet-Up (Meet Up closed 03/09)
  
   
• Fredericksburg Fibro Meetup
  Contact: Charlotte
  Web: http://www.meetup.com/Fredericksburg-Fibro/
  Started: 2009
  
• Fredericksburg Area CFS/FM C.A.R.E. Group
  (Commitment, Advocacy, Respect, Encouragement)
  Meetings: Every other Saturday, 11:00 am  - 1:00 pm,  in Stafford, VA,
      at 1449 Courthouse Road
  Shanon Hope McQuown, Group Leader
  Phone: (540) 720-2901
  Web: http://groups.msn.com/FredericksburgAreaCFSFMCAREGroup/
  Email: shmcqchildofgod@msn.com
  
  
  
• Mitral Valve Prolapse Syndrome / Dysautonomia & Orthostatic Intolerance (POTS/NMH) Support Group of Northern VA
                                                                 & Yahoo! Group MVPS-D_OI_nova
  Starting September 2008 - Meetings are by Teleconference
  Elly Brosius, Toni Marshall, Group Facilitators
  Web: http://groups.yahoo.com/group/MVPS-D_OI_NOVA/ 
  Email: MVPS-D_OI_NOVA-owner@yahoogroups.com
  To subscribe to email announcement list, send blank email to
      MVPS-D_OI_NOVA-subscribe@yahoogroups.com
  Meetings: 2nd Tuesday of each month, 12 Noon - 2pm, by Teleconference.
  Meetings: Also by appointment, in Centreville/Chantilly, VA.
  Web: cfsnova.com/mvpsoi.html
  
  
  
• Fibromyalgia/Chronic Fatigue and Persian Gulf Syndromes Support Group
  Phone: (540) 869-7150
  Meetings: Winchester Rehab Center, Winchester VA
  Third Wednesday of each month, 5:00 p.m. – 6:30 p.m. 
  
  

Other: Chronic Illness Groups for DC Area (Arthritis, IC, Lyme, Pain,...)

• Pain Connection® and The Chronic Pain Outreach Center, Inc.
  12320 Parklawn Drive
  Rockville, Maryland 20852
  Gwenn Herman, LCSW-C, DCSW, President
  Phone:  301-231-0008
  Web: http://www.painconnection.org/ 
  Email: info@painconnection.org
  
  
  Pain Connection's Wheaton, MD, Monday Speaker Series Schedule
  
  Area Support Group Meetings:
  
  Germantown/Montgomery County - 1st Thurdsays in Rockville
  Prince Georges County - 2nd Wednesdays at 1:30 pm in Lanham
  Howard County- 3rd Mondays at 1 pm in Columbia
  Gentle Movement Group - 2nd Wednesdays at 2 pm in Wash. Grove, MD
  Biofeedback Group, RSVP req'd, in Bethesda, MD
  Gaithersburg, MD -  Chinese Speaking Group
  Towson, MD/ Baltimore - 3rd Tuesdays at 11:30 am in Towson
  Virginia Chronic Pain Group - 2nd Weds at 1:30 p in Falls Church, VA
  
  (updated 01/10)
  
  
  
  
• Parents with Disabilities Meet-up
  Columbia, MD
  Web: http://www.meetup.com/Parents-with-Disabilities/
  Started: 2009
  
  
• Chemical Reaction Support Group
  Membership Info: Larry Plumlee, laplumlee@pol.net
  Web: http://www.chemsense.com/
  Meetings: in Maryland and Northern Virginia
  
  
  
  
  
• Arthritis Foundation, Metropolitan Washington Chapter
  2011 Pennsylvania Avenue, NW, 6th Floor
  Washington, DC 20006
  Phone:  202-537-6800
  Web: http://www.arthritis.org/chapters/metropolitan-washington/
  Email:  info.mwa@arthritis.org
  
  
  
• Baltimore/Washington DC IC Support Group
  P.O. Box 285
  Bel Air, MD 21014
  Tina Nachodsky, Group Leader
  Web: http://www.baltodcicsupport.com
  Email: tina@BaltoDCICsupport.com 
  Meetings are quarterly.
  
  Anne Arundel County Public Library - Maryland City at Russett Branch
  3501 Russett Common, Laurel MD 20724 (301) 725-2390 
  Sunday, September 13, 2009
  Sunday, November 15, 2009
  
  
  
• Well Spouse Support Groups - DC/Maryland, Northern VA
  A group sponsored by the Well Spouse Foundation, a national organization supporting spouses caring for a chronically ill or disabled spouse.
  Northern VA: Meets the 3rd Monday of every month from 7:00 - 9:00 PM in Burke.
  Maryland: Meets the 2nd Thursday of each month at 6:30 PM in Bethesda, MD.
  For more information, contact Dorothy at 703-425-2430 or 301-229-0114. Also see August 2004 article in Washington Post.
  
  
  
• National Capital Lyme Disease Association
  P.O. Box 8211
  McLean, VA 22106-8211
  Phone: 703-821-8833
  Web: http://www.natcaplyme.org/ 
  Email: natcaplyme@natcaplyme.org
  
  
  DC Meetings: The 1st Sunday of each month, 2-4 pm
  Sibley Memorial Hospital, Private Dining Rooms 1&2
  5255 Loughboro Rd NW, Washington DC
  Directions
  
  
  
  Fairfax Chapter Meetings: The 2nd Tuesday of every month from 1:30-3 pm
  Patrick Henry Library
  101 Maple Avenue, Vienna VA (across from the Starbucks)
  Directions
  
  
  
• Loudoun Lyme Disease Support Groups
  Western group meets 2nd Fridays at 11:00 am at St. Peters Church in Purcellville, VA
  Eastern group meets every last Tuesday the Cascades office of Dr. Sarah Fletcher in Sterling, VA (call 703-421-7000 for directions).
  Yahoo! Group: http://health.groups.yahoo.com/group/westernloudounlymediseasesupportgroup/
  
  
  
  
• Multiple Sclerosis Self Help Group
  Sponsored by The National Capital Chapter of the MS Society.
  Phone: (703) 768-4841
  Meets the 2nd Wednesday of each month, 7 PM
  Vienna Presbyterian Church, 124 Park St. NE Vienna VA. 

• Northern Virginia Brain Injury Association
  P.O. Box 2148
  Springfield, VA 22152
  Helpline: 703-569-1855
  Web: http://www.nvbia.org/
  Email: info-nvbia@nvbia.org
  
  
  
• Northern Virginia Interstitial Cystitis Support Group
  A group for anyone with interstitial cystitis (IC), a condition involving persistent discomfort in the bladder and the surrounding pelvic region. 
  Contact: Myra at 703-765-6221.
  Call for current meeting information. Used to be, may still be 2nd Thursday of each month at 7:30 p.m. at Lincolnia Senior Center, 4710 N. Chamblis St., Alexandria, VA.
  
  
  
• Northern Virginia Well Spouse Support Group
  A group sponsored by the Well Spouse Foundation, a national organization supporting spouses caring for a chronically ill or disabled spouse. Meets the third Monday of each month from 7:00 - 9:00 PM at Kings Park Library, 9000 Burke Lake Road, Burke VA 22015. For more information, contact Dorothy Saunders at 703-425-2430 or dmsaundersinva@hotmail.com. Also see August 2004 article in Washington Post.
  
  
  
• Washington DC NVA Vulvodynia Support Group
  Sponsored by National Vulvodynia Association, for women with chronic vulvar pain.
  Headquarters: 301-299-0775
  DC Area Group Leader:
  Kathy, 703-335-8286, Contact_Leader@yahoo.com
  
  
  Updated!
  Meetings typically are 11 am to 1 pm in Room A-5 of the Martin Luther King Memorial Library, located close to all Metro lines, in Washington, DC.  It is a one-block walk from either Gallery Place/Chinatown or Metro Center.  When  walk in at street level, go to elevators and down to Level A. When exit the elevator, look for a sign for Exhibition Hall.  Walk through the Hall and out the other door.  From there you will see a sign for room A-5.  Library phone and address: 202-727-0321. MLK Library, 901 G Street NW, Washington DC 20001.
   
  The MLK Library has a free parking garage.  Park in a non-reserved spot.  To enter the library from the parking garage, go through the area for security screening.  Please tell the attendant that you are there for an NVA meeting.  Then, take the elevator to Level A.  When you exit the elevator, you will see a sign for an Exhibition Hall.  Walk through it and out the other door.  From there you will see a sign for room A-5.  Please note that if parking in the garage, you will be fined if you leave the building (without car?).
   
  The 2008 schedule, ...
   
  
  
• Vulvar Pain Support Group - Maryland
  Meets the third Saturday of each month at 1:30 pm at the Crofton Library. 
  1657 Crofton Centre, Routes 3 and 424, Crofton.
  For information, call 410-721-1583.
  
  
• Sjogren's Syndrome Foundation
  6707 Democracy Blvd
  Bethesda, MD 20817
  Toll Free: 800-475-6473
  Web: http://www.sjogrens.org/
  Hosts a free, annual Autoimmune Disease Health Fair. Next one in DC area is May 30, 2009, 9 am to 12 pm, at Reston Town Center. 

• Compass Support! Timonium    (new in 2008, no longer meets)
  Therese McAllister, Coordinator
  Email: compasssupport@comcast.net
  Web: NFA Listing
  Co-Coordinator: Tina Schiller, Coordinator
  Meets: ??
  Purpose: To educate, encourage, empower people who live with the trials of chronic pain. We plan to have guest speakers and we assign homework.  For people with Fibromyalgia, arthritis and chronic pain.
   
  
• Harford County Maryland CFS/FMS/ME Support Group (no longer meets)
  D Sinclair
  Email: fibrobay@comcast.net
  
  
  VA:
  
  
• Central VA CFS/FM Association
  Post Office Box 5733
  Charlottesville, VA 22905
  Email: cfsfma@avenue.org
  Phone: (434) 984-3419
  Web: http://monticello.avenue.org/cfsfma
   
   
  
• Richmond Fibromyalgia and Chronic Pain Association
  Richmond, VA 
  Contact: Sue Walker
  Email: sue@richmondfibro.org
  Phone: (804) 862-4244 - leave a message with email address if possible
  Web: http://www.richmondfibro.org/
  
  
• Fluvanna CFS/FM Support Network   (added 10-2008; Stopped meeting 3/09)
  
  
  
• Portsmouth VA Fibromyalgia/CFIDS Support Group
  Cindy Brining: 757-399-2426 
  Karen Gilliam: 757-483-3613
  Email: Karen:  kgil526693@aol.com
  Web: http://karenscyberhome.com/portsmouthvafms-cfidssupportgroup
  
  
  
• Tidewater Chronic Pain & Chronic Illness Support Group
  Judy McClary, RN, PhD, CLNC
  Virginia Beach, VA
  Phone: 757-436-2326
  Email: doctorjrm@verizon.net   (updated 3/09)
  Web: http://www.chronicouch.org
  
  
  
• CFS/FMS Chester VA Support Group
  Amanda Wells
  Phone: 804-796-5190
  Email: amie6109@aol.com
  
  
  
• Farmville VA Area FMS/CFS Support Group
  Contact CFIDS Support Network for Information
  
  
  
• Amelia FMS Support
  Phyllis Cantrell
  13951 Clementown Road
  Amelia, VA 23002
  Phone: 804-561-1635
  Email: Ctymouse@aol.com
  
  
  
• Pain Pals (CFIDS/Fibromyalgia/Chronic Pain)
  425 Chinaberry Ct
  Virginia Beach, VA 23454
  Jaime Spiegel
  Phone: 757-943-0726
  Email: vrgnbchjaime@aol.com
  
  
  
• Buena Vista FMS-CFS-MCS-Lyme Network 
  Started in Oct 2007.
  Meets monthly in Rockbridge County,  Buena Vista, VA (near Route 81).
  Stanzi Miller
  Phone: 540-261-6280
  Email: BuenavistafibromyalgiacfsmcsLymenetwork-owner AT yahoogroups.com
  Web: Y! Group BuenavistafibromyalgiacfsmcsLymenetwork
  Blog: Musings From A FMS-CFS-MCS-Lyme Group Facilitator
  Special Meeting June 26, 2010 (Rescheduled from April 17)
  Dr. Mitchell A. Fleisher, M.D., D.Ht., D.A.B.F.M., Dc.A.B.C.T. of Nellysford, Va.
  We will meet at St. Johns United Methodist Church in Buena Vista, VA at 11 am in the sanctuary. Scent policy in effect (don't wear any scented products). Confidentiality honored.
  Dr. Mitchell's Integrative CAM Homeopathic Family Medicine & Nutritional Therapy practice has for many years provided natural medical care to very many patients suffering from CFIDS, Fibromyalgia, MCS, Lyme Disease and related co-infections.  He has utilized individualized, carefully prescribed programs of constitutional homeopathic medicine, nutritional therapy, botanical therapy, chelation therapy, bio-oxidative therapy and I.V. therapies as indicated.
  For more information email blackpercheron@gmail.com
  Or call 540-261-6280, leave message
  
  
  

National USA and International Organizations

• CFIDS Association of America
  P.O. Box 220398
  Charlotte NC 28222-0398
  Resource Line: 704-365-2343
  Fax: 704-365-9755
  Web: http://www.cfids.org
  Email: info@cfids.org
  K. Kimberly McCleary, President & CEO
  
  
• Organization for Fatigue and Fibromyalgia Education and Research (OFFER)
  1002 E. South Temple, Suite 408
  Salt Lake City, Utah 84102
  Phone: 801-328-8080
  Web: http://www.offerutah.org/ 
  Email: offerregistration@yahoo.com 
  Lucinda Bateman, MD, Executive Director
  
  
• National Fibromyalgia Partnership
  (formerly Fibromyalgia Assoc. of Greater Washington)
  140 Zinn Way
  Linden, Virginia U.S.A.  22642-5609
  Toll-Free Phone: 866-725-4404
  Fax: 540-622-2998
  Web: http://www.fmpartnership.org/
  Email: mail@fmpartnership.org
  
  
• ME/CFS Pocket Money Fund                 (Founded in 2009)
  Email: admin@PocketMoneyFund.org
  
  
  
• CFS Knowledge Center
  Web: http://www.cfsknowledgecenter.com/
  Lists of Resources, Support Groups, Books, and much more.
   
• ME/CFS Community
  Web: http://cfsknowledgecenter.ning.com/forum
  Forum for people with CFS, ME, and FMS to connect from around the world.
  
• FibroHugs
  167 Scarth Street NORTH
  Regina, SK   S4R 2Z4 Canada
  Web: http://www.fibrohugs.org/
  Email: info@fibrohugs.com
  
  
• Fibromyalgia Coalition International
  P.O. Box 9509
  Mission, KS 66201-1509
  Phone: 913-384-HOPE (4673)
  Fax: 913-384-2464
  Web: www.fibrocoalition.org
  Email: FMCFSGWSG@aol.com
  Yvonne Keeny, Executive Director
  
  
• Fibromyalgia Network
  P.O. Box 31750
  Tucson, AZ 85751
  Phone: 800-853-2929.
  Web: http://www.fmnetnews.com/
  
  
• National Fibromyalgia Association
  2200 N. Glassell, Suite A
  Orange, CA 92865
  Phone: 714-921-0150
  Fax: 714-921-6920
  Web: http://fmaware.org/
  Email: NFA@fmaware.org
  Lynne Matallana, President
  
  
• National Fibromyalgia Research Association
  P.O. Box 500
  Salem, OR 97302
  Web: http://www.nfra.net/
  
  
• CFIDS Emergency Relief Services
  4714 Northwood Lake Dr., East
  Northport, AL 35473
  Web: http://www.cfidsers.org
  Email: docesk@aol.com
  Elaine S. Katz, PhD, President
  
  
• The ME Association (Great Britian)
  4 Top Angel, Buckingham MK18 1TH
  Phone: 0870 444 1836
  E-mail: meconnect@meassociation.org.uk
  Web: http://www.meassociation.org.uk/
  
  
• ME/Chronic Fatigue Syndrome Association of Australia Limited
  c/- CFS/ME Victoria
  23 Livingstone Close
  Burwood Vic 3125 Australia
  Phone: (03) 9888 8991
  E-mail: mecfs@mecfs.org.au
  Web: http://www.mecfs.org.au/
  
  
• Medical Professionals/Persons With CFIDS
  50 N. Cecil Avenue
  Indianapolis, IN 46219-5374
  Fax: 317-899-6033
  Web: http://www.cfids-me.org/mpwc/
  Email: GailD50@aol.com, me-cfs@comcast.net
  Gail Dahlen, R.N., President
  
  
• M.E. Research (MERGE)
  UK
  Web: http://www.meresearch.org.uk/ 
   
• CFS in Kids Registry
  Lisa Baldwin, BSW
  319 Genesis Circle
  Black Mountain, NC 28711
  Phone: 828-669-4947
  Email: kidscentralregistry@yahoo.com
  
  
• International Association for Chronic Fatigue Syndrome/ME
  27 N. Wacker Drive Suite 416
  Chicago, IL 60606
  Voice Mail : 847-258-7248
  Fax: 847-579-0975
  Web: http://www.iacfs.net
  Email: admin@iacfsme.org
  Nancy Klimas, MD, President
  
  
• American Fibromyalgia Syndrome Association
  6380 E. Tanque Verde, Suite D
  Tucson, AZ 85715
  Phone: 520-733-1570
  Web: http://www.afsafund.org/
  Kristin Thorson, President
  
  
• National ME/FM Action Network (Canada)
  3836 Carling Avenue
  Nepean, ON   K2K 2Y6  Canada
  President:  Lydia Neilson
  Phone & Fax:  613-829-6667 
  Email:  ag922@ncf.ca
  Website:  http://www.mefmaction.net
  
  
• FM-CFS Canada
  John Ernst, Executive Director
  99 Fifth Avenue, Suite 412
  Ottawa ON, Canada     K1S 5P5
  Phone: 613.565.2423
  Email: hope@fm-cfs.ca               (please put 'May12' in the subject line)
  Web: http://fm-cfs.ca/home.html
  One click French Translation of Website
   
  
• Advocates for FM Funding, Treatment, Education and Research (AFFTER)
  P. O. Box 768
  Libertyville, IL 60048-0768
  Phone: (847) 362-7807
  Email: info@affter.org
  Web: http://www.affter.org/
   Y! Group: affter
  
• American Gulf War Veterans Association: CFS/Fibromyalgia Page
  P.O. Box 85
  Versailles, MO 65084
  Phone: 800-231-7631
  Web: http://www.gulfwarvets.com/cfs.htm
  Email: webmaster@gulfwarvets.com
  Joyce Riley vonKleist and Dave "Riddell" vonKleist
  
  
• National CFIDS Foundation
  103 Aletha Rd
  Needham Ma 02492
  Phone: 781-449-3535
  Fax 781-449-8606
  Web: http://www.ncf-net.org/
  Email: info@ncf-net.org 
  

• Dysautonomia Youth Network of America
  Debra L. Dominelli, Director
  1301 Greengate Court
  Waldorf, MD 20601
  Phone: 301-705-6995
  Web: http://www.dynakids.org/ 
  Email: info@dynakids.org
  For children with CFS/POTS, NMH, Orthostatic Intolerance. Summer retreats.
  
  
• The Society for Mitral Valve Syndrome
  Phone: 630-250-9327
  Web: http://www.mitralvalveprolapse.com 
  Email: bonnie0107@aol.com

• National Dysautonomia Research Foundation
  P.O. Box 211153
  Eagan, MN 55121-2553
  Phone: 651-267-0525
  Fax: 651-267-0524
  Web: http://www.ndrf.org/
  Email: webmaster@ndrf.org
  
  
  Other:
  
  
• American Chronic Pain Association
  PO Box 850
  Rocklin, CA 95677
  Phone: 800-533-3231
  Email: acpa@pacbell.net
  Web: http://www.theacpa.org
  Penney Cowan
  
  
• American Pain Foundation
  201 North Charles Street, Suite 710
  Baltimore, Maryland 21201-4111
  Phone: 1-888-615-PAIN (7246)
  Email: info@painfoundation.org
  Web: http://www.painfoundation.org/
  James N. Campbell, MD, Chair and President
  
  
• Arthritis Foundation
  1330 West Peachtree Street
  Atlanta, GA 30309
  Phone: 404-872-7100
  Web: http://www.arthritis.org/
  Email: help@arthritis.org
  
  
  
• CINDA: Chronic Immune and Neurological Diseases Association (4/06, Links inactive)
  1090 Melvin Hill Road
  Campobello, South Carolina 29322
  Web: http://cinda.org/ 
  Email: MoreInformation@cinda.org
  
  
• Chronic Syndrome Support Association
  801 Riverside Drive
  Lumberton, NC 28358-4625
  Web: http://www.cssa-inc.org/
  Email: nsolo@cssa-inc.org
  Nancy Solo
  
  
• Gulf War Veteran Resource Pages
  Web: http://www.gulfweb.org
  Grant Szabo, Editor in Chief
  
  
• Multiple Chemical Sensitivity Referral and Resources
  508 Westgate Road
  Baltimore MD 21229
  Phone: 410-362-6400
  Fax: 410-362-6401
  Web: http://www.mcsrr.org/
  Email: donnay@mcsrr.org
  Albert Donnay, Executive Director
  
  
• National Gulf War Resource Center
  8605 Cameron Street, Suite 400
  Silver Spring, MD 20910
  Email:  hq@ngwrc.org
  Phone: 301-585-4000; or 1-800-882-1316, extension 162
  Fax: 801-515-4963
  Web: http://www.ngwrc.org/
  
  
• National Vulvodynia Association
  P.O. Box 4491
  Silver Spring, MD 20914
  Phone: 301-299-0775
  Fax: 301-299-3999
  Web: http://www.nva.org/
  Email: mate@nva.org
  Phyllis Mate, Executive Director
  
  
• RESCIND
  9812 Falls Road, Suite 114-270
  Potomac, MD 20854 
  Fax: 301-983-5644 (after 6 p.m.)
  Web: http://www.geocities.com/CapitolHill/4277/
  Email: RESCINDINC@aol.com
  Tom Hennessy, President
  
  
• Well Spouse Foundation
  63 West Main Street, Suite H
  Freehold, NJ 07728
  Phone: 1-800-838-0879; 1-732-577-8899
  Fax: 1-732-577-8644
  Web: http://www.wellspouse.org/
  Email: info@wellspouse.org
  Martha Scott, President
  
  
• Weston A. Price Foundation
  4200 Wisconsin Avenue, NW
  Washington, DC 20016
  Phone: 202-333-HEAL
  Web: http://www.westonaprice.org/ 
  Email: WestonAPrice@msn.com
  Sally Fallon, MA, President and Treasurer
  Traditional foods information.

Support Groups, Associations, Contacts for CFS/FMS

• Section Table of Contents:
  
  
  1. CFS/FMS Groups with websites by US state 
  2. CFS/FMS Groups with websites by country
  3. CFS/FMS Groups with websites that cross borders
  
  4. Directories of CFS/FMS Contacts (good to find groups w/o websites) 
  5. Search news/web for support group listings

• AK
• Alaska CFS-MCS Association 
  
  Alabama
• AL
• FMS, Myofacial Pain Syndrome (MPS), & Related Conditions SG (Calhoun Co.)
• Fibromyalgia Self-Help Group of Tuscaloosa 
  
  Arkansas
• AR 
  
  Arizona
• AZ
• CFS Association of Arizona 
• East Valley Fibromyalgia Support Group - Mesa
• Fibromyalgia Alternative Network
  California
• CA
  • Directory: California CFIDS/FMS Support Groups by Melissa K 
  • Carlsbad: Fibrohaven
  • California Capital CFIDS Association (CCCA)
  • CFIDS & Fibromyalgia Self-Help 
  • Carousel Network Chronic Neuroimmune Diseases Info & Support, Sonoma
  • ImmuneSupport.com
  • National Fibromyalgia Association
  • ProHealth.com
  • Shasta CFIDS 
  • Share, Care, & Prayer
    
    Colorado
• CO
  
  • The Rocky Mountain CFIDS / FMS Association
    
    Connecticut
• CT
  • Connecticut CFIDS & FM Association
  • Yahoo! Controlling Our Own Lives (COOL)
    
    District of Columbia
• DC
  
• CFSupport for DC Area and beyond
• Elly's Gratitude Group for People with CFS/FM/OI 
• Pain Connection
• Washington DC "Vibrant Living" Meetup Group (Chronic Illness)
• Delaware
• DE
  
• Wilmington, DE CFIDS/Fibromyalgia Support Group
• Tri-State Guai Group (NJ, DE, PA) 
  
  Florida
• FL
  • CFIDS/FMS Support Group of Sarasota 
  • Fibro-Friends Community 
  • Fibromyalgia Support of Florida
  • Gainesville CFIDS Support Network
  • Miami Coral Gables CFIDS
  • PANDORA-South FL
  • Suncoast Lyme/CFS/FMS/MCS/GWS Support Network
    
    Georgia
• GA
• Chronic Fatigue Syndrome/Fibromyalgia Organization of Georgia, Inc. (CFOG) 
• FMS/CFIDS Resources of Georgia
  
  Hawaii
• HI
• 
  
  Idaho
• ID
• 
  
  Illinois
• IL
  • Chicago CFS Association
  • Chronic Fatigue Syndrome Society of Illinois
  • Advocates for FM Funding, Treatment, Education and Research (AFFTER)
  • CFS, FM, and Chemical Sensitivity Coalition of Chicago (CFCCC) 
  • Fibromyalgia Association Created for Education and Self-help (FACES) 
  • Southern Illinois Fibromyalgia Support Group
    
    
    

    Indiana
• IN
• 
  
  Iowa
• IA
  
• Fibromyalgia Syndrome (FMS): An Iowa Non-profit Support Group
  
  Kansas
• KS
  • FCI: Fibromylagia Coalition Internat'l - Getting Well Support Groups
    
    Kentucky
• KY
  • EI / MCS Information, Louisville, KY 
  • FACE_Kentucky
  • Fibrofriends of Northern Kentucky 
    
    Louisiana
• LA
• Willis-Knighton Physicial Medicine & Rehab Institute FM Support Group
  
  
  Maine
• ME
• Ability Maine with both CFS & FM Resource Guides
• Seacoast Area Fibromyalgia / CFIDS / Chronic Pain Support Groups 
• Wellness Train
  
  Maryland
• MD
• CFIDS Network of Baltimore 
• CFSupport for DC Area and beyond
• DC Fibro - Gaithersburg
• Dysautonomia Youth Network Association (DYNA)
• Elly's Gratitude Group for People with CFS/FM/OI (EGG) 
• Pain Connection - has several MD support groups 
• Maryland Bay Area CFS/OI/FMS Support
• Compass Support - Timonium (FM/Pain)
• Parents with Disabilities - Columbia
  
  Massachusetts
• MA
• Massachusetts CFIDS Association 
  
  Michigan
• MI
  • Brighton (Livingston County) CF & FM Support Group 
  • CFS and Fibromyalgia Association of SE Michigan
  • Greenville MI Fibromyalgia Support 
  • Helping Our Pain and Exhaustion (HOPE); Farmington Hills
  • Lansing Support Group
  • Livonia CFIDS/FM Support Group
  • Michigan CFS Support Groups by CFS Notebook
  • FM/CFS Support Groups listed at Chronic Pain Research U. of MI (PDF) 
  • SE Michigan FMS/CFS Support & Recovery Group (Guai Protocol)
    
    Minnesota
• MN
• Minnesota CFS/FM Association 
  
  Missouri
• MO
• FCI: Fibromylagia Coalition Internat'l - Getting Well Support Groups
  Mississippi
• MS
• The CFIDS/M.E. Association of Mississippi, Inc.
  
  Montana
• MT
• Arthritis/FM/Lupus Support Group - Kalispell
  
  Nebraska
• NE
• Fibromyalgia & Chronic Fatigue Support Group of Lincoln, Nebraska 
• Lincoln Fibromyalgia and Chronic Fatigue Support Group
  
  Nevada
• NV
• Las Vegas FMS/CFS Support Group
  
  New Hampshire
• NH
  • Seacoast Area Fibromyalgia / CFIDS / Chronic Pain Support Group
  • Massachusetts CFIDS Association 
    
       New Jersey
• NJ
• New Jersey Chronic Fatigue Syndrome Assoc. 
  
  New Mexico
• NM
• Santa Fe - Chronic Pain Support Group for Women (email for leader)
• Santa Fe - Fibromyalgia Support Group of Santa Fe
• Fibromyalgia Support Group of Grant County
  
  New York
• NY
  • The New York State CFIDS/FMS Association nycfids.org (gone 2010)
  • The Brooklyn CFIDS and Fibromyalgia Meetup Support Group
  • CFIDS / FMS Support Group of Rockland County, NY 
  • CFS Association of Long Island (lu 1999?)
  • CHARGE Inc: Cure Hope Advocacy Research and Global Education (lu 2004)
  • Fibromyalgia Central NY
  • Fibromyalgia Community Support Group of Bayside NY
  • Finger Lakes Fibro Friends
  • Long Island Fibromyalgia/CFIDS Meetup Group
  • Mohawk Valley Fibromyalgia/CFS Support Group 
  • North Brooklyn CFIDS/fibromyalgia meet-up group
  • New York Support Network 
  • New York City Fibromyalgia & CFIDS, Meetup
  • New York Chronic Pain Meetup Group
  • Oneonta Fibro/CFS Support Group
  • Potsdam & Massena Fibromyalgia Support Group
  • Rochester, NY Fibromyalgia Association of, (F.A.R.N.Y.)
  • Southern Westchester Chronic Pain Meetup Group (FM)
  • North Carolina
• NC
  • CFIDS Association of America
  • FibroMyWay - High Point
  • North Carolina CFIDS/FMS Support Groups
  • North Carolina Chemical Injury Network
  • Triangle Fibromyalgia Positive Energy Group
  • Charlotte Area CFIDS/ME/FMS Support Group 
  • Winston-Salem CFS/FMS/MPS Support Group
  • CFIDS in Kids Registry (Email Address)
    
    North Dakota
• ND
• 
  
  Ohio
• OH
• Akron-Canton Chronic Fatigue Syndrome and Fibromyalgia Self-Help Group
• Northeastern Ohio ME CFS FMS MCS Support - NEOsupport
• NEOFF
  
  
  Oklahoma
• OK
  • Men with Fibro
    
    Oregon
• OR
  • National Fibromyalgia Research Association (Salem)
  • Northcoast Lupus Fibromyalgia Support Group 
  • Fibromyalgia Information Foundation
  • Portland CFIDS Association 
  • Eugene: Lane County CFS and Fibromyalgia Support Group
    
    Pennsylvania
• PA
• Doylestown Hospital Fibromyalgia Support Group
• Pittsburgh CFIDS Support Group 
  
• Schuylkill Rehabilitation Center - FM Support Group 
• Fibromyalgia & CFS Support, York
• Hazleton Fibromyalgia Support Group
• Pennsylvania FM Support Groups
  
  South Carolina
• SC
• Foothills Fibromyalgia/CFIDS Support Network - Spartanburg
• SC Fibromyalgia Support Group 
  
  South Dakota
• SD
• Black Hills Chronic Fatigue Syndrome/Fibromyalgia Syndrome Support Group
• 
  
  Tennessee
• TN
• Knoxville Fibromyalgia Chronic Fatigue MCS Support Group 
  
  Texas
• TX 
  • Austin Southwest Fibromyalgia Support Group
  • CFIDS & FM Support Group of Dallas / Fort Worth
  • CFIDS & FM Support Group of Dallas / Fort Worth: Support Group Referrals
  • CFS/FMS Support Group of San Antonio
  • Fibromyalgia Association of Houston, Inc.
  • Houston CFIDS Support Group 
  • MY Lupus/Fibro Support Group
    
    Utah
• UT
  • Organization for Fatigue & Fibromyalgia Education & Research (OFFER)
  • Northern Utah Fibromyalgia Connection
    
    Vermont
• VT
  • Vermont CFIDS Association
  • Massachusetts CFIDS Association 
    
    Virginia
• VA
  • Chantilly: NOVA CFS/FMS Support Group (that's us!)
    
  • Buena Vista FMS-CFS-MCS Network (Rockbridge County)
  • Charlottesville: Central Virginia CFS & FM Association 
  • CFSupport for DC Area and beyond
  • Elly's Gratitude Group for People with CFS/FM/OI
  • FM Support Group of Bethesda and Silver Spring
  • FM & Arthritis Support Group (Fairfax County)
  • Fredericksburg Area CFS/FM C.A.R.E. Group
  • Fredericksburg Fibro Support Meet-up
  • National Fibromyalgia Partnership (NFP)
  • Pain Connection -- has a Arlington support group
  • Portsmouth,Va. Fibromyalgia/CFIDS Support Group
  • Richmond Fibromyalgia Meet Up Group
  • Richmond Fibromyalgia and Chronic Pain Association
  • Tidewater Chronic Pain and Chronic Illness Support Group 
  • Winchester: FM/Chronic Fatigue and Persian Gulf Syndromes Support Group
  • Woodbridge FM & CFIDS Social Group
  • VHFA Regional FM and Related Conditions Support Group So. WV & SW VA
    
    Washington
• WA
  • CFIDS/Fibromyalgia SG- The Neurological Resource Center, Richland
  • Fibro Folks of Seattle 
  • Hope Keepers of Maple Valley 
  • Seattle CFS
  • Seattle CFS and Fibro
  • Washington State CFIDS/FMS Support Groups 
    
    West VA
• WV
• VHFA Regional FM and Related Conditions Support Group So. WV & SW VA
• FamilyCare Fibromyalgia Self-help Group
  
  Wisconsin
• WI
• Wisconsin Chronic Fatigue Syndrome Association
  
• Barron County SG for FM/CFIDS/Chronic Pain: (715): 924-4904 & 637-9013
  
  
  Wyoming
• WY
• 
  

• England/UK
  

• 25% ME Group
• Action for M.E.
• Association of Young People with ME (AYME)
• Beccles & District ME/CFS Support Group
• Blue Ribbon for the Awareness of ME (BRAME)
• Bury/Bolton ME/CFS Support Group
• Cambridge ME Support Group
• Chorley & South Ribble ME Support Group
• Clwyd ME Support Group
• Colchester ME Support Group
• Croydon ME Support Group
• Cumbria: MEED (ME in Eden District)
• Dumfries & Galloway ME Network
• East Sussex: Remember-CFS
• Edinburgh ME Self-Help Group
• FM Support Group of Surrey and Sussex
• Fibromyalgia Association UK
• Fibromyalgia support of Northern Ireland
• Irish ME/CFS Support Group
• Hampshire Friends with M.E.
• Leeds & District M.E. Group
• ME Association
• ME Chat - with a large support group directory 
• ME North East
• ME & CFS Self Help Group for Hull & East Yorkshire
• ME Staffordshire Support
• ME Support in the Midlands (last updated in 2000)
• MERGE UK/Europe/World ME/CFS Support Group Links
• MEWL (ME in West London)
• Mid and West Wales ME Support Group
• Milton Keynes M.E. Support Group - MK MEG
• Morecambe Bay ME Group
• National M.E. Centre and Centre for Fatigue Syndromes- Support Groups
• Network ME
• NetworkMEsh (West London)
• North Herts ME Support Group
• Overton Studios Trust 
• Peterborough ME & CFS Self Help Group Supporting ME, CFS and PVFS
• Ross on Wye ME Support Group
• Rainbow ME Group for Exeter and surrounding areas.
• Sheffield ME Group
• Sheffield Yoga for ME/CFS
• Shropshire and Wrekin ME Support Group
• Solihull & South Birmingham ME Support Group
• Suffolk Youth & Parent Support Group
• Sunderland and South Tyneside ME/CFS Support Group
• Support M.E. Hampshire [Youth]
• Sussex ME/CFS Society
• Swindon ME Support Group
• Tameside & Glossop ME Support Group
• TYMES Trust – Young Action Online
• Welsh Association of ME & CFS Support (WAMES) WAMES
  Cymdeithas Cefnogi ME a CFS Cymru
• Worcestershire M.E. Support Group 
• Directory: UK ME/CFS Support Groups by Hammersmith Press (by location)
• Directory: FM Association UK Support Groups by Region
• Directory: Nat'l M.E. Centre & Centre for Fatigue Syndromes- Support Groups
  
  
  Canada
  
• Canada
  

• British Columbia Fibromyalgia Society
• FibroHugs Support and Awareness
• FibroMyalgia Support - Ottawa West 
• FM-CFS Canada - Compassion in Action 
• The Nightingale Research Foundation
• National ME/FM Action Network 
• ME Association of Ontario, Canada
• Myalgic Encephalomyelitis Association of Halton & Hamilton-Wentworth
• Waterloo Wellington Myalgic Encephalomyelitis Association
• Myalgic Encephalomyelitis Support Services (M.E.S.S.) Toronto
• FM Support Groups listed at the Arthritis Society, Alberta & NW Territories
  
  
  New Zealand

• NZ
• Associated New Zealand ME Society (ANZMES)
• Directory: ANZMES list of NZ Support Groups
• M.E./CFS GROUP (Canterbury) Inc. 
• Brainstorm & The Wellington ME/CFS Support Group 
• Hamilton Cfs (ME) Support Group New Zealand
• ME and Information Support Services Otago & Southland, Dunedin 
• Rotorua ME/CFS Charitable Trust  
  
  Australia
• Australia
  
• ME/CFS Society (South Australia) 
• The ME/Chronic Fatigue Syndrome Association of Australia Limited 
• Canberra FM and Chronic Fatigue Syndrome & A.C.T. ME/CFS Society 
• ME/Chronic Fatigue Society of New South Wales 
• ME/CFS/FM Support Association Queensland 
• FM/CFIDS/ME Groups - Western Australia, Mandurah, Busselton, Northam
• Southern Australia Youth with ME/CFS (SAYME) 
• ME/Chronic Fatigue Syndrome Society of Victoria
           http://avoca.vicnet.net.au/~mecfs/
• Directory: ME/CFS of Victoria's Australian Societies, incl. Tasmania 
         http://avoca.vicnet.net.au/~mecfs/state_soc.html#Victoria
• Alison Hunter Memorial Foundation for Research into ME/CFS
• Merle Fullerton's  Myalgic Encephalomyelitis, FM and related disorders Page
   
  

• Argentina
  
• Enfermedades Crónicas Socialmente Invisibles
  
  Belgium
• Belgium
• CVS-Vereniging; ME-WEB; ME-NET; ME-Vereniging 
  
  France
• France
• L'Association Française du Syndrome de Fatigue Chronique et de fibromyalgie CFS/SPID
  
  Germany
• Germany / Deutschland
• der Deutschen Gesellschaft Multiple-Chemical-Sensitivity (DGMCS) 
• Fatigatio e.V.
  Bundesverband Chronisches Erschöpfungssyndrom (CFS/CFIDS/ME) 
• CFS aktuell
• Chronisches Erschöpfungssyndrom, CFS, www.cfs-portal.de
  
  Nederland
  
• The Netherlands / Holland
• ME/CVS - Het Alternatief - Website of Frank Twixt
• ME/CVS-Stichting Nederland
• ME/CVS Documentatiecentrum 
  
  Denmark
• Denmark
• ME/CFS - Kronisk Træthedssyndrom 
• ME Site 
  Slovenia
• Slovenia
  
• CFS&FM Support group Slovenia: Društvo za fibromialgijo
  Spain

• Spain
• FIBROFATIGA-UNIDOS
• La Fundación Privada para la Fibromialgia y el Síndrome de Fatiga Crónica 
• Associació Catalana d'Afectats per la Síndrome de fatiga Crònica / ENCEFALOMIELITIS MIÀLGICA (ACSFCEM)
• SOSSFC: la web de los activistas contra SFC
  
  Sweden
• Sweden
  
• Swedish ME Association
• Resources in Swedish by CFS-NEWS
  
  Switzerland

• Switzerland
  
• Verein CFS Schweiz
  
  Japan
• Japan
  
• Co-Cure Japan
• Keep on Hopin'

• Elly's Gratitude Group Conference Calls (English)
  
• Many online groups cross borders
• Yahoo CFS Groups, Yahoo FM Groups, Yahoo Group CFSupport by us
• MSN Health & Wellness Support Groups
  
• Many Chats, Penpals, Blogs, and Forum groups cross borders
• Directory: Disabilities On Line 911 CFS Online Support Groups
• Directory: Disabilities On Line 911 FMS Online Support Groups

• By Email: Request Support Network Directory for location CFIDS Association
  
• Directory: Find a Support Group Prohealth.com
• Directory: FAME Support Directory National Fibromyalgia Association / FMAware
• Directory: FM & CFS Support Groups - Worldwide FM & CFS Resources
  
• Directory: Support Group Referrals CFIDS & FM Support Group of DFW
• Directory: CFS/FM/MCS Support Groups Directory CND
• Directory: Support Group Referrals From Fatigued To Fantastic / End Fatigue
• Directory: List of FMS/CFS Support Groups ImmuneSupport.com
• Directory: The Invisible Disease List of CFS/FM Support Groups CFS-info.com
• Directory: Local Support Groups by State Our CFS/FM World
• Directory: Support Groups by State Portsmouth VA FMS-CFIDS Support Group
• Directory: Fibromyalgia Groups CJ Machine, Iowa
• Directory: CFS Online Support Groups Disabilities On Line 911
• Directory: FMS Online Support Groups Disabilities On Line 911
• Directory: On and off-line Guaifenisen Groups - Info & Support for FM
  
• Directory: FM CFS Canada, Compassion in Action Support Grps (US, Canada, World)
• Directory: European CFS/ME and FM organizations by ME-WEB
• Directory: ME Chat National (UK) and Regional Support Groups
• Directory: UK: Nat'l M.E. Centre & Centre for Fatigue Syndromes- Support Groups
• Directory: United Kingdom ME/CFS Support Groups by Hammersmith Press
• Directory: FM Association UK Support Groups by Region
• Directory: UK/Europe/World ME/CFS Support Groups at MERGE
• Directory: NZ: ANZMES list of Support Groups in New Zealand
• Directory: ME/CFS of Victoria's Australian CFS/ME Societies
  
• Directory: CDC List of CFS Patient Support Groups (very out of date)
• Directory: FM and CFS Support Groups - Fibronol.com (copied CDC, out of date)
  
  
  
• Search for Support Group Meetings News/Web [add state/country to narrow results]:
  
  
• Google "News" for CFS/FM Support Group Meeting Listings
• Google Web for "Chronic Fatigue Syndrome CFS CFIDS Support Groups"
• Google Web for "Fibromyalgia FM FMS Support Groups"