CFSupport

The Northern Virginia (NOVA)
CFS/ME, FMS, OI & Gratitude
Support Groups

 
Speakers - Prior

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PREVIOUS SPEAKERS
Alphabetical Order

Go to Page of Upcoming Speakers Only

Abrams, Esq Ashton, PT 10/94 Baer Bains, MS, RN, CS-P
Bajek Baraniuk, MD Bateman, MD Berg, MS
Bellanti, MD Bernad, MD Billman, Esq Jan 95 Binning, DC
Blackman, MD PhD Brosius, MS Brown, NCCAOM B
Calihan, MD Cheney, MD, PhD Chesney, PhD Clauw, MD
Cox, DHC Dale, Esq De Meirleir, MD PhD DePorter, CPCC RCC
Margaret D'Urso 2/94 Epstein, MD 10/93 Fallon Freix, CBT
Friedberg, PhD Frymark & Park Fuller, Esq G
Gilbert, NCCAOM Gollobin, 6/95 Glass, Esq Green
Gribble, PT Hall Hayat Hellinger
Hyde, MD Jawer Kaplan Khalsa, DC
Kysela, PT Lambros, Esq Levin, PhD 8/93 Levin, MD
Levine, MD Libiot Lucas, PhD 7/93 Lukara
Makoul, CNC Mathis, Esq Mitchell, L.Ac. Morell, ND
N O'Brien, LAc O'Brien, PharmD 2/98 Offerman, LCSW 8/96
Offutt Pecht 2/95
Pfeiffer Pocinki, MD
Rathbone 7/97 K Reddy, MD W Reddy, LAc Rowe, MD
S The Sheridan Group Simpson, PhD Soliman, MD
Solsberry, LCSW 12/94 Stevens, MA Trocki & Zipper Veiga
Walitt, MD
Walker Wallace,md795 1296 398 Whitney, LMFT
Wood & Riodan X Y Z


Since 1993, The Northern Virginia CFS/FMS Support Group has invited speakers on topics including medical and alternative treatment of CFIDS and FM, research, coping, legal issues and more. We often update the contact information below and add links for our guests
which include doctors, attorneys, and authors. Unless otherwise noted, lectures were held at
INOVA Fairfax Hospital Room ECC5 in Falls Church, VA, before 1992 to March 2005,
Mason Governmental Center in Annandale, VA, April 2005 to December 2008,
or Sully Governmental Center in Chantilly, VA, starting January 2009.



PREVIOUS SPEAKERS
In Order of Appearance


April 17, 1993
August 1995
March 15, 1997
Sept 18, 1999

Dallas K. Mathis
Attorney at Law

Topic Applying for Social Security Disability Income Benefits (SSDI)
Address Mathis & Mathis, PC
Arlington, VA
Phone 703-671-4484 (2010)
Email
Web MathisDisabilityAdvocates.com (2010)
Notes - Recommends video Preparing for Your Social Security Hearing
- On our Practitioners List

Table of Prior Speakers

May 15, 1993

Dee Brown, M. Ac., R. Ac.
Acupuncturist

Topic Acupuncture and CFS
Address Kensington Acupuncture Assoc
3930 Knowles Ave #301, Kensington, Maryland 20895
Phone (301) 949-5570
Fax
Email deebr@toast.net
Web
Notes NCCAOM Acupuncture and Herbology. 5 Element Style, Japanese Needling Technique, Meridian Therapy, Herbal Therapy
- On our Practitioners List

Table of Prior Speakers

May 16, 1993

Byron Hyde, MD
Nightingale Research Foundation

Topic The Clinical and Scientific Basis of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome, Edited by Byron Hyde, MD
Attendees: 105
Address  121 Iona St, Ottawa Ontario  K1Y 3M1   Canada
Phone  FAX  (613) 523-1958
Email nightingale@nightingale.ca
Web http://www.nightingale.ca/
Notes 80 of the world's leading M.E. / CFS authorities contributed to this 725 page encyclopedia. Addressed as Chronic Fatigue Syndrome, Myalgic Encephalomyelitis and Post-Viral Fatigue Syndrome, M.E./CFS has provoked a chronic disabling illness in an estimated 1,000,000 persons. 75 chapters. Comprehensive account of history, epidemiology, children with M.E., investigation, virology, immunology, muscle pathology, host response, food intolerance, brain mapping, neurophysiology, neuro- psychology, psychiatry, sleep dysfunction, fibromyalgia syndrome, treatment and management. 1992. $49.99
- On our Practitioners List


June 19, 1993

Norman Levin, MD
Rheumatology, Internal Medicine, and Chelation Therapy

Topic A Holistic Approach to CFS
Address 39070 John Mosby Hwy (Rt 50), P.O.Box 107, Aldie VA 201050107
Phone 703-327-2434 or 703-260-3484;  FAX 703-327-2729
Email
Notes Norman Levin, MD, "Rheumatoid Arthritis and Fibromyalgia," Alternative Medicine Digest (September 1997): 100-105.
- On our Practitioners List


July 17, 1993

Gurutrang Khalsa, DC

Topic Applied Kinesiology and Contact Reflex Analysis
Address 708 Pine St, Herndon VA 20170
Phone (703) 481-9000
Email
Web
Notes  King Bio Homeopathics





February 1994
April 20, 1996
Sept 20, 1997
Feb 19, 2000
Jan 20, 2001
July 20, 2002
Sept 18, 2004
Nov 19, 2005
Sept 16, 2006
Sept 15, 2007
Sept 20, 2008
July 18, 2009
Sept 18, 2010
Nov 19, 2011
Mar 16, 2013
Mitch Lambros
Attorney at Law
Lambros & Lambros
Specializing in Social Security Disability Benefits

Topic Applying for Social Security Disability Benefits (SSDI)
when you have Chronic Fatigue Syndrome, Fibromyalgia, or similar conditions.
Address 9900 N. York Road, Cockeysville, MD 21030
Phone 410-666-2200; 800-562-0044;  FAX 410-666-0244
Email See: lambroslaw.net/contact-us.html
Web www.lambroslaw.net 
Notes - CSN Champion Award 2000
- Past President, Maryland Trial Lawyers Association
- Handout1: Myths About Social Security Disability Claims
- Handout2: SSDI Programs &
    Special Issues for CFIDS & FM Sufferers in Proving Disability

- Our Speaker Page for Mitch Lambros
- Recommends video Preparing for Your Social Security Hearing
-
On our Practitioners List


Table of Prior Speakers

Nov 1995
Sheraton Premiere
Tysons Corner

Daniel Clauw, MD
Professor of Internal Medicine
  Director, The Chronic Pain and Fatigue Research Center

Topic Current Research in FM/CFS
# of Attendees: greater than 180
Address University of Michigan Health System
Department of Internal Medicine
Division of Rheumatology
Domino's Farms, 24 Frank Lloyd Wright Dr, Rm Lobby M
Ann Arbor, MI 48106-385
Phone (734) 647-5900;  FAX (734) 615-5308
Email dclauw@umich.edu
Web http://www.med.umich.edu/painresearch
Notes About Dr. Clauw, leading FM/CFS researcher
2005: A CFS – related proteome in human cerebrospinal fluid
What are Chronic Multi-symptom Illnesses?
Our Advice to Patients
PDFs - Self Management Skills/Techniques
At the time Dr. Clauw addressed our group, he and the Research Center were at Georgetown University Medical Center in Washington, DC.
Study on Nasal Secretions in CFS group members participated in with lead author/group speaker Kris Naranch.
- A CFS – related proteome in human cerebrospinal fluid, Dec 2005
- On our Practitioners List


April 1996

April 18, 1998

Joseph Bellanti, MD
Professor of Internal Medicine
  Director, The Chronic Pain and Fatigue Research Center

Topic NADH and FM/CFS
Address Georgetown University Medical Center.
Phone 202-444-8233
Email baraniuj@georgetown.edu
Web http://pediatrics.georgetown.edu/members/JosephBellanti.shtml
Notes  - On our Practitioners List

Table of Prior Speakers

Sept 21, 1996

Sept 15, 2007

James N. Baraniuk, MD
Assistant Professor of Medicine

Topic 2009 - Visited recruiting research subjects
2007 - New research for diagnostic marker for CFS at Georgetown
1996 - Allergies and FM/CFS
Address Georgetown University Medical Center. Gl008 Gorman
3800 Reservoir Rd Gl008, Washington DC 20007-2113
Phone 202-444-8233
Email baraniuj@georgetown.edu
Web http://explore.georgetown.edu/people/baraniuj/
Notes Areas of expertise include: neuroimmune regulation of mucosal function in rhinitis, sinusitis, asthma, and CFS
- Article: Evidence for CFS?
- CFS and Overlapping Conditions. CFS Research Review Spr 2004
- Group members participated in 1998 in studies on Nasal Secretions in CFS with author/group speaker Kris Naranch and Dr. Baranuik leading to papers such as : Differences in Baseline Nasal Secretions Between Chronic Fatigue Syndrome (CFS) and Control Subjects
- Neuropathology in Rhinosinusitis, 2005
- A CFS – related proteome in human cerebrospinal fluid, Dec 2005
- Dec 2005 Press Release about above CFS study quoting Baraniuk
- On our Practitioners List

Table of Prior Speakers

Nov 16, '96
Mar 20, '98
Feb 20, '99

Paul H. Levine, MD
Clinical Professor of Medicine and Epidemiology & Biostatistics
George Washington University Medical Center

Topic CFS Research Overview
Address George Washington University School of Public Health & Health Services
2300 I Street N.W., Ross Hall 118;  Washington, D.C. 20037
Phone 202-994-4582
Fax 202-994-9940
Email sphphl@gwumc.edu
Web http://www.gwumc.edu/sphhs/faculty/levine_paul.cfm
Notes -Video and audio tapes still available of 1999 Presentation. (4/06)
-Levine & others: Neuromyasthenia and CFS in No. NV/CA: A ten-year follow-up of an outbreak. J Chronic Fatigue Syndrome 2001;9:3-14.


Jan 18, 1997

Nadir Soliman, MD
Anesthesiology, Pain Medicine and Medical Acupuncture

Topic Homeopathy, Pain Management, and Acupuncture.
Address Dir. Washington Alternative Med & Integrated Pain Management Cntr
15001 Shady Grove Road Suite 100, Rockville MD 20850
Phone 301-251-2335;   FAX 301-610-5006
Email myalternatives@yahoo.com
Web http://www.alternativemedicineseminars.com/doctors.html
Notes A leading expert in the field of auricular medicine.
- On our Practitioners List


April 19, 1997
Mar 17, 2001
Feb 16, 2002

The Sheridan Group
The Lobbying Firm of the CFIDS Association

Topic How to get our message about CFS to Congress and Federal agencies
Address 1808 Swann Street, NW; Washington, DC 20009
Phone 202-462-7288;  FAX 202-483-1964
Email
Web www.sheridangroupdc.com 
Notes Spotlight on Tom Sheridan (Spoke to us in 2001)                                  
Mary Beth Buchholz, spoke in 2001 & 2002, is no longer with group.)
General CFIDS Lobby Days Information
2006 CFIDS Lobby Days Registration Forms (PDF)
CFIDS Community Congressional Activities
Lobby Day 2006 Report from CFIDSLink
Lobby Day 2005 Report from CFIDSLink


Aug 15, 1998
Oct 19, 2002

John T. Cox, DHC
Master Practitioner of NLP,  Doctor of Clinical Hypnotherapy
Board Certified Hypnotherapist

Topic Mind body harmony
Address Reston, VA
Phone 703-435-6002
Email HypnoDream@aol.com
Web http://www.geocities.com/hypnosis_doc/
Notes  What is NeuroLinguistic Programming? (NLP)
- On our Practitioners List


Oct 1998

Mark Llewellyn Hall
Author, Spoken Word Artist

Topic His book, Dazed and Fatigued in the Toxic 21st Century
Address  
Phone  
Email mrkhall@worldnet.att.net  ? out of date ?
Web  
Notes  Book Review by Nat'l FM Association / FM Aware


Nov 21, 1998 Martha Whitney, LMFT
Family and Marriage Therapist
Topic How chronic illness affects relationships.
Address 904 John Marshall Highway, Front Royal VA 22630
Phone (540) 631-0999
Email martha@marthawhitney.com
Web http://www.marthawhitney.com/
Notes Improving relationships. Relieving anxiety and depression.
Resolving conflicts. Coping with chronic medical conditions. 
Hypnosis and Hakomi, a body-based psychotherapy.
- On our Practitioners List
- "Good Relationships are No Fairy Tale" (If Snow White had FM?)


Jan 16, 1999 Jayne Gribble, PT
Registered Physical Therapist
Topic Functional Capacity Evaluation
Address was NRH/Suburban Regional Rehab. Now unknown.
Phone
Email
Web
Notes - MedStar National Rehab Network Function Capacity Evaluation Info
- Ergonetics.com Posture Guide
- Occupational Therapy
- Memory & Neuropsychological Disorders
- Vocational Rehabilitation
- Our Practitioners List for Functional Capacity Evaluations


April 17, 1999

Lois Pfeiffer

Topic Reiki healing
Address  
Phone 703-561-3558
Email  
Web  
Notes  


May 15, 1999
Oct 6, 2001

Leslie O. Simpson, PhD

Topic Red blood cell shape distortion in CFS
Address Red Blood Cell Research Limited
31 Bath Street
Dunedin, New Zealand 9001
Phone 64 3 471 8540
Fax 64 3 471 8530
Email leslie.simpson@xtra.co.nz (updated 2009)
Web http://www.geocities.com/redbloodcellresearch/ 
Notes http://www.dfwcfids.org/simpson/
http://members.aol.com/rgm1/private/simpson.htm
http://www.anapsid.org/cnd/diagnosis/redcells.html
2008 Book: Blood Viscosity Factors - The Missing Dimension in Modern Medicine


Aug 21, 1999

David E. Berg, MS
Director, HEMEX Laboratories, Inc.

Topic Hypercoagulation in CFS;  treatment with heparin.
Address HEMEX Laboratories; 2505 West Beryl Ave., Phoenix AZ  85021
Phone 800-999-CLOT (2568);  602-997-9161
Fax 602-997-4489
Email davidberg@hemex.com
Web www.hemex.com
Notes Is CFS/FM due to an undefined Hypercoagulable state....
CFS &/or FM as a variation of Antiphospholipid Antibody Synd. ...


Oct 16, 1999

Nancy Kysela, PT
Director, Physical Therapy Dimensions

Topic Breathing, visualization, & stretching to reduce pain and effects of stress
Address
Phone
Email  
Web  
Notes  moved from our area


June 17, 2000

Bill Dale
Attorney at Law

Topic Private / Long Term Disability (LTD) insurance benefits.
Address McChesney & Dale, PC;  4000 Mitchellville Rd, Bowie MD 20716
Phone 301-805-6080;   FAX 301-805-6086
Email McChesney & Dale Contact Us Page
Web www.mcchesneydale.com
Notes - On our Practitioners List

July 15, 2000

Jacqueline Offutt
Nutritional Supplement Consultant

Topic Nutritional supplements
Address The Virginia Center for Nutraceutical Education and Research
Phone 703-589-1919
Fax 540-882-4082
Email jvoffutt@aol.com
Web  
Notes Ten Commandments for a long and healthy Life! - J. Offutt
- Meeting Notes by member CB
- Royal Body Care Supplements recommended by Offutt


Nov 18, 2000

Sally Fallon
Author; President of Weston A. Price Foundation
Topic Nourishing Traditions: The Cookbook that Challenges
Politically Correct Nutrition and the Diet Dictocrats.
Address The Weston A. Price Foundation
PMB 106-380, 4200 Wisconsin Avenue, NW; Washington, DC 20016
Phone 202-333-HEAL
Email info@westonaprice.org
Web www.westonaprice.org
Notes Notes on Price Foundation, Nourishing Traditions, Sally & Geoffrey


Nov 18, 2000

Geoffrey Morell, ND
Treasurer, Weston A Price Foundation, Spiritual Healer & Naturopath

Topic Hands of light (energy) healing
Address 4200 Wisconsin Ave NW; Washington, DC 20016
Phone 202-237-8763
Email fourhealing@mac.com
Web  
Notes Notes on Price Foundation, Nourishing Traditions, Sally & Geoffrey
- On our Practitioners List

Feb 17, 2001 Sam Makoul, CNC
Board Certified Clinical Nutritionist
Topic HeartMath & Other Techniques for Stress Relief
Address Center for Advanced Health & Wellness
Sterling, VA
Phone 703-787-6660;  703-904-1677 (DC metro exchange)
Email
Web Our Speaker Page
Notes Group Meeting Notes About Sam Makoul
Elly's Notes about HeartMath for Stress Reduction
Fibromyalgia, A Metabolic Profile -  Hair Tissue Mineral Analysis
July/Aug 2004 Newsletter by Trace Elements Inc

- On Our Practitioner's List: Counseling, Nutrition


Mar 16, 2002

Ted O'Brien, LAc, LN
Licensed Acupuncturist & Chinese Medicine Practitioner
Topic Acupuncture and nutrition in treating CFS and FMS; and the Jaffe-Mellor Technique
Address Center for Integrative Medicine
908 New Hampshire Ave #200,  Washington, DC 20037
and
Bethesda Acupuncture
4405 East West Highway #600, Bethesda MD 20814
Phone 202-833-5055 (Washington) and 301-655-1600 (Bethesda)
Email TedOBrien@aol.com
Web http://www.bethesdaacupuncture.com/
Notes http://www.integrativemedicinedc.com/p606.html
- On our Practitioner's List

Aug 17, 2002

Tory Trocki and Carrie Zipper

Topic ELISA/ACT testing and Perque supplements
Address ELISA/ACT Biotechnologies LLC
14 Pidgeon Hill Drive, Suite 300;  Sterling, VA 20165
Phone 800-553-5472; 703-450-2980
Fax 703-450-2981
Email clientservices@elisaact.com
Web http://www.elisaact.com
Notes Meeting notes about ELISA/ACT

July 19, 2003

Ben Glass
Attorney at Law

Topic Long Term Disability
Address 3915 Old Lee Highway, Suite 22-B
Fairfax, VA 22030
Phone 703-591-9829;   FAX 703-783-0686
Email ben@benglasslaw.com 
Web BenGlassLaw.com 
Notes Free booklet on LTD to VA, MD and DC residents, $25 to others:
"14 Ways to Guarantee that Your
Long-Term Disability Claim is Denied and You Lose in Court"

- On our Practitioners List


July 19, 2003

Sheri Abrams, P.C.
Attorney at Law

Topic Social Security Disability
Address Needham Mitnick & Pollack, PLC
400 South Maple Ave., Suite 210
Falls Church, VA 22046
Phone 703-536-7778
Email sheri@sheriabrams.com
Web www.sheriabrams.com 
Notes - On our Practitioner's List
- How To Win Your Case For Social Security Disability Benefits If You Suffer From Chronic Fatigue Syndrome and/or Fibromyalgia
- Newsletters with Social Security Disability Information
- Chat Transcript Oct 2009 "Work Disability, SSDI, Health Ins."


Oct 18, 2003

Patricia Ann Hellinger
Author

Topic Book: Hiatal Hernia & Chronic Fatigue Syndrome- And Many Other Diseases Healed Naturally Through the Power of Cause and Effect
Address Montana
Phone
Email
Web
Notes  


Nov 1, 2003

Alex. Hosp

Kenny L. De Meirleir, MD, PhD
Professor of Physiology and Medicine
Vrije Universiteit Brussel, Brussels, Belgium

Topic Acclydine: A Therapeutic for Chronic Fatigue Syndrome?
Address Vrije Universiteit Brussel (The Free University of Brussels);  
Pleinlaan 2;  1050  Brussels, Belgium
Phone +32-2-6292222
Fax +32-2-6292876
Email Kenny.De.Meirleir@vub.ac.be
Web De Meirleir at Vrije Universiteit Brussel
Red Labs USA
Notes - Acclydine in Patients with Chronic Fatigue Syndrome
- Acclydine Protocol - OptiPharma bv (PDF)
- Advances in ME/CFS Testing & Treatment
- Book: Chronic Fatigue Syndrome: A Biological Approach
- CFS: Critical Reviews and Clinical Advances
- Value of exercise testing for predicting employment status in CFS
- Gen. joint hypermobility more common in CFS than controls, 2006
- Interview on Radio Liberty, April 30, 2002
- Journal of Chronic Fatigue Syndrome
- Recent Research by De Meirleir on Free University's Website
- Recent Research Pub Med Query
- RNase L Dysfunction Disorder (R.E.D.D.) in CFS
- On our Practitioners List



Nov 15, 2003

Margaret A. Chesney, PhD
Deputy Director
National Center for Complementary and Alternative Medicine
Topic Alternative and Complementary Medicine at NIH
Address National Center for Complementary & Alternative Medicine (NCCAM)
National Institutes of Health (NIH)
31 Center Drive, MSC 2182; Bethesda, MD 20892-2182
Phone 301-496-5825;  FAX 301-594-6757
Email chesneym@mail.nih.gov
Web National Center for Complementary and Alternative Medicine
Notes - Margaret A. Chesney, Biography
- Life Stresses and Mind-Body Therapies
- Recent Research




March 20, 2004
Oct 16, 2004
Sept 17, 2005
June 17, 2006
Mar 17, 2007
May 10, 2008
Oct 26, 2008
Sept 5, 2009

Jonathan Gilbert, NCCAOM
Diplomate of Chinese Herbal Medicine & Acupuncture

The Gilbert Clinic

Topic Broadening Perspectives on Stress & Syndromes
Address The Gilbert Clinic
Air Rights Center Buildings, East Tower
7315 Wisconsin Ave, Suite 760 E
Bethesda MD 20814 (updated July 2011)
Phone (301) 215-4177  (updated July 2011)
Email info@thegilbertclinic.com
Web www.thegilbertclinic.com
Notes - When Pushing Stops Working.com
- Audio Presentations of WPSW
- CFSupport Meeting Notes, Background, Links for Gilbert
- PDF-Effectiveness of Chinese Herbal Treatment for FM/CFS-Full
- PDF-Effectiveness of Chinese Herbal Treatment for FM/CFS-Abstr
- Q&A Perspective with 3 Gilbert Patients. Spr '06 CFIDS Chronicle
-
On the Frontier, A New Model for Treating CFS and FM. Last page:
   Treatment: Clinical Care for CFS Winter 06 CFIDS Chronicle

- When Sleep Goes Bad, March 2007
  Documentary on The Learning Channel Featuring The Gilbert Clinic
- 2006: Finally, getting his zzz's. After coping with a sleep disorder,
  a Woodbridge man gets help from TV. Richmond Times-Dispatch.

- 2004: WebMD - IBS and Alternative Therapies
- 2003: Eastern Medicine Gains Ground In Region by Drew Bush
- Biography at TheGilbertClinic.com
- Our Practitioners List: Consulting Herbalist / Acupuncturist
- Chinese Medicine Gaining Respectability in West;
  FDA support for testing of botanical drugs helps boost credibility
  of ancient herbal treatments

- SF Chronicle 06/2706. "One reason more patients and doctors are embracing traditional Chinese medicine is the reported success rate at treating "multisystemic" maladies, like fibromyalgia, chronic fatigue syndrome and chronic pain, which affect the brain as much as the body."
Talk Titles:
6/2006: CFS & FM: States of Unrest
How chronic overwhelming stress gets you there,
possibilities for resolving symptoms.
 
3/2007: Herbal Brews & Evolving Views
Reuniting the Body & Mind in Fibromyalgia, CFS, & ME
10/2007-09/2009: Broadening Perspectives on Stress & Syndromes, When Pushing Stops Working


April 17, 2004

Peter Bernad, MD
Neurologist

Topic A Holistic Approach to FM
Address Neurology Services Inc;
2112 F St NW #303; Washington, DC 20037-2754
10721 Main Street, # 200; Fairfax, VA 22030-6902
2616 Sherwood Hall Ln #201, Alexandria VA 22306
Phone 202-728-0099, 703-352-5861 or 703-360-3414 (Alex, VA)
Fax 202-638-7869 (DC) or 703-691-2690 (FF, VA) 
Email  
Web http://www.neuro-doc.com/
Notes Alexandria office has ANSAR and Sleep Center
- Neurotoxicology: A Clinical Sourcebook
- Closed-Head Injury: A Clinical Sourcebook
- On our Practitioners List

 

Feb 19, 2005

Deborah Barrett DePorter, CPCC, RCC
Author & Life Coach

Topic HeartMath - The Antidote for the Stresses of Everyday Life
Address CHANGE Associates, Potomac Falls VA 20165
Phone 571-276-5528
Email
Web
Notes Article: Steps to Reducing Stress and Reclaiming Your Life at Work
Book: Get Your Life Back: Overcoming Chronic Illness One Day at a Time.
Elly's Notes about HeartMath for Stress Reduction
- On Our Practitioners List

June 18, 2005

Kumunda Reddy, MD & J. Reddy, MD
Ayurvedic, Natural, and Holistic Doctor

Topic Ayurvedic Medicine for Chronic Illness
Address All Healthy Family, 5009 Paducah Road, College Park, MD 20740
Phone 1-866-REDDYMD; 1-301-474-2184
Email www.allhealthyfamily.com/contact.html  
Web www.allhealthyfamily.com
Notes Books:
- Conquering Chronic Disease Through Maharishi Vedic Medicine
- Living Life Free From Pain:
  Treating Arthritis, Joint Pain, Muscle Pain and Fibromyalgia with
  Maharishi Ayurveda

On our Practitioners List

Table of Prior Speakers

June 25, 2005

Lucinda (Cindy) Bateman, MD
Internal Medicine
Organization for Fatigue & FM Education and Research (OFFER)

Topic kNOw MORE CFS Kick Off Seminar w/ CFIDS Association
“Fatigue, fatigue or fatigue? Strategies for
Diagnosing and Managing Fatigue in CFS/FM
Special Date/Location: ASCE Bechtel Conference Center, Reston, VA.
# of Attendees: 141
Address 1002 E South Temple, Suite 408; Salt Lake City, UT 84102
Phone 801-359-7400 (Dr. Bateman); (801)328-8080 (OFFER)
Email Support@OFFERUtah.org
Web http://www.offerutah.org/
Notes OFFER's About CFS
OFFER's About FM
CFIDS Association Spotlight on Cindy Bateman
DVD: Managing Fatigue. L. Bateman, MD. $10
On our Practitioners List
Treatment: Clinical Care for CFS 2005-2006 CFIDS Chronicle


June 25, 2005

Staci Stevens, MA
Exercise Physiologist

The Founding Executive Director of the Pacific Fatigue Laboratory

Topic kNOw MORE CFS Kick Off Seminar w/ CFIDS Association
“Activity Management: How to Do More With Less”
Special Date/Location: ASCE Bechtel Conference Center, Reston, VA.
# of Attendees: 141
Address Pacific Fatigue Laboratory
University of the Pacific, Department of Sport Sciences
3601 Pacific Avenue
Stockton, CA 95211
Phone (209) 946-7649
Email sstevens@pacific.edu
Web http://web.pacific.edu/x31823.xml
Notes A Realistic Approach to Exercise for CFS Patients
Staci Stevens Chronic Fatigue Battle ('94)
Summer 2004 The CFIDS Chronicle:
When Working Out Doesn’t Work Out
Postexertional malaise, joint pain, crushing fatigue. There are lots of reasons why exercise is often a dirty word to people with CFIDS. Research suggests CFIDS patients may not get the oxygen they need during exercise. While a cookie-cutter approach to exercise doesn’t work, many PWCs can benefit from an analeptic exercise program.
By Dr. Christopher Snell, Dr. J. Mark Vanness and Staci Stevens
Treatment: Clinical Care for CFS 2005-2006 CFIDS Chronicle,
Sidebar: A New Definition of Exercise

- Cracking the Foundations - The Pacific Fatigue Lab and Chronic fatigue Syndrome (ME/CFS), exercise,  Jan 2009 About ME/CFS, Cort Johnson, Phoenix Rising


Aug 20, 2005
Nov 21, 2009
Michael Jawer
Researcher and Author
Topic Environmental Sensitivity and Psi: Are They Linked? (2005)
How Feelings Link the Brain, the Body, and the Sixth Sense (2009)
Address Emotional Gateway Research Center, Vienna VA
Phone  
Email Contact Info Page at Emotion Gateway
Web http://emotiongateway.com/
Notes - Winner of 14th D. Scott Rogo Award for Parapsychological Literature
- CFSupport Yahoo email about impending visit to Group, 8/20/05;
- CFSupport Yahoo email about psi definitions
- Press Release: A Neurobiology of Sensitivity?
- Environmental Sensitivity: Inquiry Into a Possible Link with Apparitional Experience by Michael Jawer. The Journal of the Society for Psychical Research 70(882): pp. 25-47
- What Kind of People Feel too Much?
   CFS Article in Sept/Oct 2006 Spirituality and Health Magazine:
- A Neurobiology of Sensitivity?
   Sentience as the Foundation of Unusual Conscious Perception

   Science & Consciousness Review - Jan 17, 2007
- How to scare up a happy, healthy Halloween day
   10/29/06 - nashuatelegraph.com
- 2009 Book:
The Spiritual Anatomy of Emotion:
   How Feelings Link the Brain, the Body, and the Sixth Sense

- Interview at BeliefNet 2009
- Excerpts of 2009 Book in our Archives:
   - "Introduction and The Author's Perspective"
   - Chronic Fatigue and Immune Function
   Environmental Sensitivity, Attesting to the BodyMind
   Overlapping Sensitivities

   - The Mind Reconsidered: Distinguishing Intellect from Intelligence and You're So Weird

Dec 17, 2005

Christel Libiot
Life Coach & Workshop Presenter

Topic Chose the Life YOU Want to Live!
Address P.O. Box 8, Cheltenham, MD 20623-0008
Phone 301-372-8718
Email coachchristel@att.net
Web  
Notes - 2004 Rose Award, Woman Within International
- About Christel and the December 2005 Workshop
- Life Coaching Can Enrich Your Life (Oct. 2005)
- How Would Your Life Be Different? (Nov. 2005)
- Chose the Life You Want to Live (Dec. 2005)
- On Our Practitioners List

Table of Prior Speakers


May 20, 2006 Andrew Baer, MD, & Jina Kim
Topic Diet, Free Radicals, Anti-Oxidants, Carotenoids,
the Bi0Photonic® Scanner, and LifePak Supplements.
 
Address Anti-Aging Global
Phone 703-979-0302
Email drbaer@mybigplanet.com
Web
Notes - Andy invites people to him for references, papers, etc.
- Abstract: Oxidative stress levels are raised in chronic fatigue syndrome and are associated with clinical symptoms. Kennedy, Spence, McLaren, Hill, Underwood, Belch Free Radic Biol Med. 2005 Sep 1;39(5):584-9.
CFS: Oxidative Stress and Dietary Modifications, Logan & Wong 2001, Alternative Medicine Review
- About Lester Packer, the world’s foremost antioxidant scientist
- Lester Packer is on Pharmanex Scientific Advisory Board 
http://www.pharmanexusa.com   (Scanner overview available here)
- http://www.nutritionfilecabinet.com/

Table of Prior Speakers



Oct 21, 2006 Janine Blackman MD, PhD
Family Practice. Integrative Medicine. Epidemiology.
Topic Applying Integrative Medicine to FM and CFS.
The Return of Soul to Medicine &
The Role of the Integrative Physician

Address Baltimore, MD, and Bethesda, MD
Phone (240) 863-2478                                            updated May 2011
Email RiverSoul Wellness Contact Us
Web www.RiverSoulWellness.com
Notes - CFSupport Meeting notes & handouts, more links for Dr. Blackman
- 2004 WebMD Article: IBS and Alternative Therapies
- WholeHealthMD.com Bio
- The Center for Mind Body Medicine - Certified Practitioners
- 2007: Are You Ready to Discuss Complementary
   and Alternative Medicine? by Janine A. Blackman, MD, PhD

- When Sleep Goes Bad, March 2007
   A documentary on The Learning Channel

- Our Practitioners List: Family Practice, Nutrition

Table of Prior Speakers


Jan 20, 2007 Chuck Fuller
Attorney at Law
Topic Private / Long Term Disability (LTD) insurance benefits. (ERISA)
Address McChesney & Dale, PC;  4000 Mitchellville Rd, Bowie MD 20716
Phone 301-805-6080;  FAX: 301-805-6086
Email McChesney & Dale Contact Us Page
Web www.mcchesneydale.com/attorneys/
Notes - Meeting Handout: LTD Claims Overview of the Claims Process and Practical Considerations. Updated 2/16/07. (PDF)  
The LTD Claims Overview is provided by Chuck Fuller for information purposes only. He is neither agreeing to accept cases or represent people who review the document, nor is any information provided to be interpreted as legal advice about a specific case or claim.

- On our Practitioners List - Many member recommendations. Very familiar with chronic fatigue syndrome, fibromyalgia, and many other conditions requiring a skilled attorney.
- Concentrates in general litigation, with emphasis on personal injury, worker’s compensation, insurance coverage, ERISA, and products liability.  Also active in estates and trust practice.

Table of Prior Speakers


Mar 17, 2007

Anita Bains, MS, APRN, BC
Licensed Psychotherapist
Board Certified Advanced Practice Registered Nurse
Topic Herbal Brews & Evolving Views
Reuniting the Body & Mind in CFS & FM
Address 204 E. Joppa Rd, PH1, Berkshire Town Center, Towson, MD 21286
Phone 410-760-8792
Email anita_bains@comcast.net
Web www.anitabains.com/
Notes - "Healing Post Traumatic Stress Disorder" Video
- Nurses.com: Emotional Freedom Technique Shows Promise
   (interview with Anita Bains) March 2007
- When Sleep Goes Bad, March 2007
A documentary on The Learning Channel
- Our Practitioners List: Counselors

Table of Prior Speakers

Mar 29, 2007
June 14, 2007
Oct 2, 2007
Oct 10, 2007
Alissa Lukara
President of Life Challenges.org;
Author of Riding Grace, A Triumph of the Soul; Former PWC

Topic Writing Grace Workshop—How writing Riding Grace transformed Alissa Lukara’s life and opened her to her life’s purpose.  How creative expression can help open you to your own.

March 2007: Elly's Gratitude Group meets Alissa Lukara
June 14, 2007: Riding Grace Coast to Coast Teleconference
October 2, 2007: Writing Grace Teleconference
Address
Phone
Email info@ridinggrace.com
Web http://www.lifechallenges.org
http://www.ridinggrace.com
Notes - On our Book Page 2007
- "Healing CFS and Meeting Life Challenges Teleconference"
   Alissa Lukara and support group facilitator, Elly Brosius
   Audio Recording, 6/14/07 includes Readings from Riding Grace



Table of Prior Speakers


April 5, 2007

Fred Friedberg, PhD
Author, PWC, Clinical & Research Psychologist
Topic A Lifestyle Balance Program for Less Pain and More Energy
Lecture & Book Signing
Special Date/Time/Location:
Davis Library
6400 Democracy Blvd
Bethesda, MD
Time: 1:30 - 3 PM
In conjunction with PainConnection

Address PO Box 456
Kent, CT 06757
Phone 516-702-4213 (NY) and (860) 619-8069 (CT); Phone Consultations.
Fax 860-619-8069
Email info@lifebalance7.com
Web http://www.lifebalance7.com/
Notes - Dr. Friedberg became President of IACFS/ME in 2009
- CFSupport Meeting notes & handouts, more links for Dr. Friedberg
- Article from 2007 with Elly Brosius:
   "When your Mind goes to Talk Therapy, is your Body Invited?"
On Practitioners List - Nationwide, On Practitioners List - Counselors
- On our Book Page 2006
- Department of Psychiatry & Behavioral Science, SUNY Stonybrook
- Recent books:

Table of Prior Speakers


April 21, 2007

Alan Pocinki, MD
Internal Medicine

Topic The cycle of pain, fatigue, poor sleep, and depression.
With extra detail about sleep.
Discussion will address the importance of treating all aspects of the cycle--sleep, pain, and depression--in order to improve fatigue. Helping one or two alone isn't enough--it's the holistic thing. You can't just fix one piece and expect the other pieces to fix themselves.  For sleep, and of course this applies equally to pain and other symptoms (and depending on time we can talk about them, too) I'll stress that different people have non-restorative sleep for different reasons, so sleep needs to be evaluated, eg with sleep study, to have the best chance of concocting an effective cocktail to improve it.
Address 2141 K St #606
Washington DC 20037
2012: Practice is closed to new patients.
Phone (202) 223-2283
Web http://www.alanpocinkimd.com/
Notes - CFSupport Meeting notes & handouts, more links for Dr. Pocinki
- On our Practitioners List
- Attended NoVA 2005 kNOw MORE CFS conference!

Dr Pocinki on the Web :

Table of Prior Speakers

Oct 11, 2007
Nov 14, 26, '07
Dec 2, 10 2007
Jan 9, 31 '08
Mar 1, 3 '08
May 10, '08
Oct 26, '08
Sept 5, '09
Elly Brosius, MS
Facilitator
N0VA CFS/ME, FMS, & OI Support Group
(OI includes MVPS/D, POTS, NMH)
Elly's Gratitude Group (EGG)

Topic "When Pushing Stops Working"
Address
Phone (703) 968-9818
Email cfsupport-owner@yahoogroups.com
Web http://www.cfsnova.com/
Notes - When Pushing Stops Working.com
- Audio Recording When Pushing Stops Working - Sept 2009
- Audio of Awareness Day Teleconference 2008
- On our About Us Page, Information about Elly
- "Healing CFS and Meeting Life Challenges Teleconference"
   Alissa Lukara and support group facilitator, Elly Brosius
   Audio Recording, 6/14/07 includes Readings from Riding Grace

Published Articles:
2010 "How Art is Part of My Healing"
2009 "Years of Suffering Dissolving with Gratitude & Chinese Herbs"
2007 "When your Mind goes to Talk Therapy, is your Body Invited?"
2007 "Secrets of a Long Standing Support Group"
2006 "EGGing Each Other On - From Incitement to Insight"
2002"Inclined to Recline: Tips for living with OI"
1999 "Pelvic Varicosities and Pelvic Pain"

Table of Prior Speakers

Nov 8, 2007


Gary Kaplan, DO


Topic Fibromyalgia & Its Medical Treatments Q&A
Special Location, Date & Time- The Kaplan Clinic, noon, following a free screening of the film "Living with FM, A Journey of Hope and Understanding"
Address

The Kaplan Center for Integrative Medicine, P.C.
6829 Elm Street, Suite 300, McLean, VA 22101

Phone (703) 532-4892
Email
Web www.kaplanclinic.com
Notes - Past president of the Medical Acupuncture Research Foundation.
- Anesthesiology-Pain Management, Acupuncture
- Osteopathic manipulative therapy, homeopathy, and mind-body work.
- Wrote a piece called What is Biotoxicity/Neurotoxicity?
- Our Practitioners List: Family Practice

Table of Prior Speakers


Feb 16, 2008

James G. Binning, D.C.
Chiropractor

Topic Therapeutic Methods for FM/CFS
Address Chiropractic Center of Manassas, Inc.
Ambassador Square
7505 Presidential Lane
Manassas VA 20190
Phone (703) 257-0100
Web http://www.spinedoc.us
Notes - On our Practitioners List
- CFSupport Page for Dr. Binning
Dr. Binning has a special interest in chronic pain, including fibromyalgia.





Jul 19, 2008

Joan Green, MA, CCC-SLP
Cognitive Rehabilitation

Topic The Use of Technology along with a holistic 'life participation' approach for FM/CFS
Address Innovative Speech Therapy
7731 Tuckerman Lane #206
Potomac, MD 20854
Phone (301) 602-2899, (800) IST-2550
Fax (301) 610-9234
Email Joan@innovativespeech.com
Web http://www.innovativespeech.com/
Notes - On our Practitioners List
- Author: Technology for Communication and Cognitive Treatment: The Clinician's Guide




Jan 17, 2008

Matthew Hayat, PhD, NMQ
Integrative Whole Body Therapy

Topic Medical Qigong, Self-health Techniques
Address
Phone (301) 437-4966 appointment only
Email healing@martialsigning.com
Web http://www.martialsigning.com/healing.html
Notes Kiai Jin Jitsu - Instructor
Qigong for Self Health - Instructor
Master of Medical Qigong Therapy - Certified
Heart Centered Therapy
- On our Practitioners List

Table of Prior Speakers


Mar 21, 2009
Chantilly, VA

Peter Rowe, MD
Sunshine Natural Wellbeing Foundation Professor of
Chronic Fatigue and Related Disorders,
Department of Pediatrics,
Johns Hopkins University School of Medicine.
Director, Chronic Fatigue Clinic,
Johns Hopkins Children's Center.

Topic
"Update on Orthostatic Intolerance in CFS (and FM)."



This talk will describe the links between disturbances in the control of blood pressure and heart rate in those with Chronic Fatigue Syndrome (CFS), and will discuss practical aspects of managing symptoms caused by the circulatory problems in CFS (and similar syndromes). 

Slides available to members in CFSupport Files Section
Address David M. Rubenstein Child Health Building
Room 2077
200 N. Wolfe Street
Baltimore, MD 21287
Phone (410) 955-9229
Fax
Email prowe@jhmi.edu
Web www.hopkinschildrens.org/staffDetail.aspx?id=3226
Notes Dr. Rowe directs the Chronic Fatigue Clinic at Hopkins Children’s. His work first identified the relationship between chronic fatigue syndrome (CFS) and treatable orthostatic intolerance syndromes, and first reported the association between Ehlers-Danlos syndrome and CFS. He has been interested in the association between orthostatic intolerance and upper gastrointestinal symptoms, fatigue in cancer survivors, fatiguing illnesses in Gulf War veterans, and fatigue in athletes.
- NOVA/CFSupport Page about Dr. Rowe with more links
- kNOw More CFS Presenter Fall 2005
- General Information Brochure on Orthostatic Intolerance
    and Its Treatment (27 page PDF)

- CFSupport Y! email "Dr. Rowe is one of my medical heroes" by Toni
- CFSupport Y! email "More [Dr. Rowe] stories" by Elly
- On Practitioners List: Beyond DC, Dysautonomia, Adolescents Only




April 4, 2009
Leesburg, VA

Jan 15, 2011

May 19, 2012
Sep 15, 2012

Brian T. Walitt, MD
Assistant Professor of Medicine
Georgetown University Medical Center
Associate Director, Section of Rheumatology

Medical Director
MedStar Health Fibromyalgia Evaluation and Research Center (FMeRC)
Topics What is CFS? TBD, 2012

What is Fibromyalgia? Jan 2011 in Chantilly

Fibromyalgia 201
To Loudoun CFS and FM/Chronic Pain Seminar Group
Address Washington Hospital Center
110 Irving Street, NW
Washington, DC 20010
Phone (202) 877-8535
At FMeRC, contact Patrice Thompson at 202-877-0890
Fax (202) 877-6130
Email
Web Walitt's Biography at MedStar Washington Hosp. Center
Notes - Our Speaker Page for Dr. Walitt
- On our Practitioners List in Rheumatology
- "Understanding Invisible Disorders" - Featured Story about FMeRC by Georgetown University Medical Center


Table of Prior Speakers


April 25, 2009
Fairfax, VA

Paul R. Cheney, MD, PhD
Director of The Cheney Clinic

Topic

Chronic Fatigue Syndrome:  
Is Oxygen the Problem and Why? 
A Four-Part Treatment Protocol

CFSupport's page for this event
   including DVD ordering, attendee comments, more web links


Address The Cheney Clinic
P.O. Box 15675
Asheville NC 28813-0675
Phone (828) 274-6665
Fax (828) 274-6917
Email
Web http://www.CheneyResearch.com 
http://www.CheneyClinic.com
Notes - CFSupport's page about Dr. Cheney and this event
   including DVD ordering, attendee comments, more web links

- Article: Oxygen Toxicity as a Locus of Control for CFS
- Article: Cell Associated Therapy for CFS: Is this the Next Frontier?
- On our Practitioners List under "Beyond DC"
- Phoenix Rising's "The Cheney Files"
CFS/FM Support Group of Dallas Fort Worth page on Dr. Cheney
    includes artilces, interviews and treatment protocols.




Oct 17, 2009

Virginia Mitchell, L.Ac.
Acupuncturist

Topic Non-Linear Aspects of Healing
Address Acupuncture and Bodywork Associates
708 Sugarland Run Drive, Sterling VA 20164
Phone 703-421-1300
Fax
Email
Web  http://www.virginiabodywork.com/
Notes - Handout in November 2009 Newsletter
- Voted: Best Acupuncturist in 2008 and 2009 by No. VA Magazine
- On Our Practitioner's List: Acupuncture



Nov 7, 2009

Martha Calihan, MD
Family Practice and Integrative Medicine

Topic An Integrative Medicine Approach to CFS/FM
Address Integrative Family Medicine Center
116-Q Edwards Ferry Rd, NE
Leesburg, VA 20176
Phone 703-669-6118
Fax
Email
Web http://www.integrativefamily.com/
Notes - Co-leads OASIS monthly gathering for deepening practices and connecting to one's deeper self. Sample topics: Staying Whole Through the Holidays: Finding the Joy, Reducing the Stress.  Journey Unfolding: Exploring Our Life Paths. Abiding Love: the Twists and Turns of Love in Our Lives
- On Our Practitioner's List: Family Practice




Sept 18, 2010

Sue Walker
Fibromyalgia Author

Support Group Leader

President, Richmond Fibromyalgia and Chronic Pain Association

Topic Book Signing:
Taming The Fibromyalgia Dragon:
Thoughts on Life With Fibromyalgia

Address
Phone
Fax
Email
Web www.richmondfibro.org
and
http://www.meetup.com/richmondfibrosupport/
Notes - Book reviews at Amazon.com
Profile at Medpedia

Table of Prior Speakers



Aug 20, 2011

Michael Bajek
LaserTouchOne Educator / Distributor
Topic Discussion of pain and use of cold laser therapy with micro-current stimulation with home handheld devices. No-strings attached demonstrations.
Address
Phone
Email
Web http://www.ltostore.com/va0804
Notes



Apr 21, 2012

Bill Reddy, L.Ac., Dipl.Ac.
Acupuncturist at QiMed
Topic Herbs and supplements for general health, for CFS.
Address Pinecrest Wellness Center
7010 Litter River Turnpike, Suite 430; Annandale, VA 20003
Phone (703) 354-2225
Email acu_health@yahoo.com
Web http://www.qimed.com/
Notes Director, Integrated Healthcare Policy Consortium President Emeritus,
Acupuncture Society of Virginia
Professor, Virginia University of Oriental Medicine



April 20, 2013
Laura Freix
Certified BodyTalk Practitioner
Accunect™ Practitioner
CHEK Holistic Lifestyle Coach

Topic Healing with Accunect™ SelfCare
Address Centreville, VA 20120
Phone 571-232-9979
Email heal@bodytalkhorizons.com
Web www.iembracewellness.com
Notes - Meet Laura
- Listing at BodyTalk website
- Healing with Accunect™ - Future Medicine Today website
- Facebook page for I Embrace Wellness
- Facebook page for Embrace Choffy

Table of all Prior Speakers at Top


FUTURE FIRST TIME SPEAKERS:



March 15, 2014
Marjorie MacArthur Veiga
Author
Patient Advocate

Topic "Managing the Medical Mayhem--Go from Piles to Files."
Address Northern VA
Phone 703-615-6661
Email mveiga@mylymeguide.com
Web http://mylymeguide.com
Notes - About Marjoire
- My Lyme Guide on Facebook
- About Marjorie at Lyme Aware

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Updated March 14, 2013